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Ben Austin's Fundraiser:

Running the NYC Marathon for Frontotemporal Dementia Research

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Ben's Photo
Ben Austin

THE STORY:

I'm running the 2014 New York City Marathon (my first) in memory of my father, Robert Austin, who passed away in 2009 from a rare neurodegenerative disease called Frontotemporal Dementia (FTD). It typically strikes at an earlier age than Alzheimer's (45-65) and affects the part of the brain that controls speech, personality and judgment (rather than long-term memory). It is fatal and there is no known cure. Many patients with FTD, including my dad, also develop ALS or other motor-neuron diseases, which only accelerates their deterioration.

My mother wrote a very moving piece for the New York Times in 2010 about my dad's battle with the disease, which you can read here: http://www.nytimes.com/2010/04/11/fashion/11LOVE.html?pagewanted=all

FTD is a horrible disease that robs people of what makes them "them." Although running a marathon seems positively old-fashioned in the age of the Ice Bucket Challenge, I want to do whatever I can to raise awareness of FTD and hopefully raise some serious cash. All proceeds from this fundraiser will go to The Association for Frontotemporal Degeneration (www.theaftd.org). They are a wonderful organization dedicated to supporting patients, families, and caregivers, as well as funding research to one day find a cure.

As for my marathon training, I'm not half-assing it. I'm doing the official NYRR training regimen and running five times a week. While I can't promise a sub-four hour finish, I can ensure that I will be giving it all I got.

So please donate what you can and come cheer me on November 2nd. We'll all grab a beer after the race and celebrate my dad's memory. Thank you!

$12,000

MONEY RAISED
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  • Jules

    $50

  • Christianne Reiniger

    $100

  • Stacey kirsch

     

  • Bridget Lipman

    $50

  • Fernando

    $25

  • Debra Kay Sinkus :)

    $100

  • Brianna Sullivan

    $10

  • Melinda & Justin Bonner

    $100

  • Katrina Kaufman

     

  • Genevieve Wanucha

    $25

  • Jamie Hodari

    $50

  • Telis and Kelly

    $50

  • Puja Kartan

    $25

  • Lauren Mifflin

    $25

  • Patty and Chuck

    $100

  • Marmar

    $50

  • Sarah

    $25

  • Mariel Diaz

     

  • Dave Lucey

    $50

  • Jen and Jon

    $25

  • Tara Leifer

    $25

  • lucy nathanson

     

  • Amy Brown

    $50

  • Peter and Maggie

    $100

  • Wally Lamb

    $200

  • Lita Weissman

    $20

  • Phil

    $25

  • Stacy Schiff and Marc de La Bruyere

    $500

  • Rosemary Caine /Howard Natenshon

    $200

  • Lynn Schnurnberger

    $50

  • Pia & Luke

    $50

  • Long Pham

    $30

  • Anonymous

     

  • John and Janet Egelhofer

    $100

  • Anonymous

    $30

  • Preston

    $100

  • Scott

    $50

  • Matt Lewis

    $25

  • Jim and Kit

    $200

  • Anita and John

    $200

  • Nicole Urken and Jordan Sinclair

    $50

  • Jill and Bob Jaffe

    $100

  • Adriaan & Els Kroonenberg

    $100

  • Astrelle

    $25

  • Esther

    $25

  • Jenn Blazejewski

    $40

  • Bonnie and David Covey

    $100

  • Ted Caine and Josh Korth

    $40

  • Deborah Slobodnik

    $100

  • Ali Lipman

    $25

  • Beth Gutcheon

    $200

  • Barbara Potzka

    $25

  • Elizabeth and Charlie D'Amour

    $100

  • Jeff Gnatek

    $20

  • Sarah Elizabeth Greer

    $50

  • Bobbie Sproat

     

  • Thibault

    $50

  • The Avedesians

     

  • Marje

    $100

  • Nancy Quinn

    $25

  • Jonathan Morris

    $20

  • Anonymous

    $40

  • Oliver & Amy Tatom

    $50

  • Joe Ferrante

    $100

  • Sean K

    $40

  • Ginnie Judd

    $50

  • Anonymous

    $20

  • Ben and Rebekah Brenner

    $40

  • Patricia Lee Lewis

    $25

  • Anonymous

    $40

  • Imran Khan

    $25

  • Anonymous

    $100

  • Dan Akst & Louise Dewhirst

    $100

  • Marc Weiss

    $50

  • Pat and Barbara

    $600

  • Cookie Davidsen

    $25

  • Stephanie Quinn Donahue

     

  • FREDA BROWN

    $25

  • Karen(Goldberg) and Mark Meyer

    $25

  • Suzie russin

     

  • Beth Walter

    $500

  • Liz Brack

    $100

  • Robie Rogge

    $100

  • G Yolen

    $100

  • Nicole Savini

    $42

  • Vic and Anna Lee Lipman

    $100

  • Shelley and Rob Freedman

     

  • Ben and Erin Duffy

    $100

  • Toby Brown

    $20

  • Mike and Sharon Trivino

    $50

  • Hunter Hicks

    $50

  • Moira Kelley

    $10

  • Jonathan Allen & Shelley Farmer Allen

    $250

  • Mustafa Riffat

    $50

  • Warren Taff

     

  • Jeff and Laxmi Wordham

     

  • Alice Saunders

    $25

  • Aaron

    $25

  • Ruth Apgar

    $50

  • Ben Austin

     

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120% Raised of $10,000 Goal

Donor Comments

Ben Austin

Ben Austin

4 years ago

Ruth Apgar

Ruth Apgar

DONATION: $50

Enjoy this amazing experience. Good running! 4 years ago

Aaron

Aaron

DONATION: $25

4 years ago

Alice Saunders

Alice Saunders

DONATION: $25

Saw your fundraiser via AFTD .. my father (who ran the NYC marathon in 1994!) also has FTD. Honored to donate .. good luck and have fun this weekend! 4 years ago

Jeff and Laxmi Wordham

Jeff and Laxmi Wordham

4 years ago

Warren Taff

Warren Taff

In memory of a beloved cousin. 4 years ago

Mustafa Riffat

Mustafa Riffat

DONATION: $50

A great cause in honor of an even greater man. Go Ben! 4 years ago

Jonathan Allen & Shelley Farmer Allen

Jonathan Allen & Shelley Farmer Allen

DONATION: $250

4 years ago

Moira Kelley

Moira Kelley

DONATION: $10

Thank you from another family affected by FTD. 4 years ago

Hunter Hicks

Hunter Hicks

DONATION: $50

4 years ago