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Timothy Byers' Fundraiser:

Fueled by WILL Power

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Timothy's Photo
Timothy's Photo
Timothy's Photo
Timothy's Photo
Timothy's Photo
Timothy Byers

THE STORY:

Show the world that you are fueled by WILL Power and run with us at upcoming races around the country! Join our team as a fundraising teammate and challenge your friends, family, and colleagues to sponsor your race and support life-saving research at the same time!

All you have to do is join the team, set up a profile, and pick your race.  Any race in any place can be run in honor of Will and all of the children fighting Sanfilippo Syndrome!  We will send you an customizable WILLPower letter that you can then send out to your supporters in order to help raise awareness and funds to combat this devasting disease!  Thank you for your support!
 

WILL'S STORY

Will was diagnosed with Sanfilippo Syndrome, Type B (MPS III-B) in March 2015. To find out that your beautiful son has a rare, incurable, degenerative disease is unimaginable. In an instant, every dream we had for our child, from playing little league to college graduation, became uncertain.  Sanfilippo Syndrome is a progressive disorder that starts to shut down the brain and central nervous system. Enzymes needed for cells to process cellular waste are missing or are poorly functioning.  Over time, waste build up leads to severe disability, robbing a child of the ability to walk, talk, and do everyday activities independently, eventually leading to early death. The heart breaking truth is that without funding there is no treatment.  Without treatment, most Sanfilippo children do not reach adulthood.  But, even now, we find HOPE.  Please help us raise awareness and find a cure!

 

CHANGE WILL'S OUTCOME

We were devastated upon hearing Will’s initial diagnosis, but we continue to find HOPE.  We are living in a time of medical miracles and history is in the making.  Knowing that the first ever Sanfilippo gene therapy human clinical trials are slated to start in 2016 means that a cure could be on the horizon.  But we need YOUR HELP.  These amazing studies and trials are happening in part because other Sanfilippo families have made their voices heard and raised awareness and funding to make treatments no longer a far-off dream, but a potential reality. And now we join their voices, and we ask you to join with us. Become fueled with WILL Power and donate today!

All donations go directly to Cure Sanfilippo Foundation (Tax ID: 46-4322131), a non-profit 501c3 organization and will be used to fund upcoming research and clincial trials for the treatment of Sanfilippo Syndrome.  All donations are tax deductible.  More information on the Cure Sanfilippo Foundation can be found at www.CureSFF.org.

Donations can be made here with a credit card or a check* can be mailed to:
Cure Sanfilippo Foundation
PO Box 6901
Columbia, SC 29260
*If donating by check, please write 'WILL Power' in the memo line.

Contact information: 
Email: willpowermps@gmail.com
Facebook: www.facebook.com/willpowermps
Twitter: @willpowermps
Blog: http://everyeleventhwithlittlebuddy.blogspot.com/

For more information on MPS III, please go to: http://mpssociety.org/mps/mps-iii/

DONATE

To This Fundraiser

$16,409

MONEY RAISED
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  • Kevin & Kim Davidson

    $75

  • Loren Worley

     

  • Pete & Kathy Bergeron

    $50

  • Mark Seefeldt

    $100

  • Linda Peloquin

     

  • Chuck & Judi Curtis & family

     

  • A friend- Ruth

    $50

  • Mimi and PopPop

    $50

  • Andrea (Hefner) Larason

    $25

  • Eicks Clan

     

  • Abby

     

  • Brad DeCuir

    $105

  • John and Susan

    $25

  • Michelle Bates-Lunsford

    $25

  • Chad & Margie

    $25

  • Breezie

    $50

  • Signor crew

    $40

  • Alan O'Donnell

    $100

  • Charissa & Jarryd Gonzales

    $100

  • PC

    $50

  • Laura and Scott Hurt Family

    $40

  • John & Mary Wolk

    $50

  • The Peters family

    $25

  • Lyndi, Sam, and Jack

    $50

  • Christine

    $25

  • Johns family

    $50

  • The Cousineaus

    $25

  • Anonymous

    $25

  • Barbara Wolfinger

    $100

  • Doug and Beth DeBeech

    $25

  • Anonymous

     

  • Price Mathieson

    $100

  • Anonymous

    $500

  • Ali Sulak

    $30

  • Charley and Vikki

    $300

  • Anonymous

    $100

  • Great thing you are doing!

    $100

  • Vic & Dianne Estes

    $100

  • The Brossman Family

    $100

  • Anonymous

    $200

  • your first ever training partner

    $250

  • Michael Arthur

    $100

  • Rachael Andrews

    $50

  • Alan Breed

    $250

  • Ron Dechiro

    $100

  • Zach Haynes

    $100

  • Best of Luck! Christie & Yoni Sade

    $200

  • Matt Marek

    $100

  • Iain Mitchell

    $150

  • Catalina & Oliver

    $100

  • Andre and Tee Cain

    $100

  • Anonymous

    $100

  • ade adeleye

    $100

  • Alex Biro

    $50

  • Barry & Winny Aschenbrenner

    $100

  • Lisa & Marcus

    $70.30

  • Anonymous

    $500

  • Anonymous

    $200

  • Mike Anderson

    $200

  • Brian King

    $100

  • Dan & Kathy Shipper

    $100

  • Anonymous

    $200

  • Tom and Patty Tirlia

    $100

  • fuzzy

    $150

  • Pam and Brad Martens

    $250

  • Blake, Jessi, Zooey, and Zach Tirlia

    $100

  • Petar & Catherine

    $250

  • Anonymous

    $50

  • Kim and Bret

    $270

  • Mary, Alex and Davis

    $100

  • Nancy Mallis

    $100

  • Jorge Trujillo

    $50

  • Cheryl and Larry Hall

    $75

  • The Moses Family

    $100

  • john schneider

    $200

  • Ironman couple from AUS

    $185

  • Darrell

    $100

  • Galliano Marine Service

    $2,500

  • Anonymous

    $62

  • An old friend

     

  • Jeff

    $10

  • brent

    $25

  • Jody

    $25

  • Monica and Brian Weida

    $50

  • Chrissy Merrill

    $40

  • Anonymous

    $50

  • The Staffaroni Family

    $35

  • Anonymous

    $50

  • Carolyn

    $50

  • Lindsay and Paul

    $50

  • Anonymous

    $100

  • Allison & Vince Janis

    $50

  • Chris Garcia

    $50

  • Anonymous

    $50

  • Greg Ducote

    $50

  • Let's Go Will!

    $50

  • Michelle Clark

    $50

  • Susan Freed

    $25

  • WILL Power!

    $100

  • The Gauthiers

    $632

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164% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $16,409 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Tim Tirlia

Amount Raised

$7,650

 

153% Raised of $5,000 Goal

Fundraiser Title

Will Byers

Amount Raised

$3,635

 

727% Raised of $500 Goal

Fundraiser Title

Jennifer Colerick and Sheri Bell

Amount Raised

$1,855

 

186% Raised of $1,000 Goal

Fundraiser Title

Monica Bomkamp Enia

Amount Raised

$880

 

117% Raised of $750 Goal

Fundraiser Title

Jamie Gauthier

Amount Raised

$807

 

20% Raised of $4,000 Goal

Fundraiser Title

Lyndley Maddox

Amount Raised

$785

 

157% Raised of $500 Goal

Fundraiser Title

Lisa Ducote

Amount Raised

$672

 

134% Raised of $500 Goal

Fundraiser Title

Timothy Byers

Amount Raised

$125

 

1% Raised of $10,000 Goal

Donor Comments

The Gauthiers

The Gauthiers

DONATION: $632

2 years ago

WILL Power!

WILL Power!

DONATION: $100

Run Fast Mr Jamie! Your Buddy, WILL 2 years ago

Susan Freed

Susan Freed

DONATION: $25

Because I love my crazy ironman Jamie Gauthier who is running to support this cause. 2 years ago

Michelle Clark

Michelle Clark

DONATION: $50

2 years ago

Let's Go Will!

Let's Go Will!

DONATION: $50

2 years ago

Greg Ducote

Greg Ducote

DONATION: $50

Hang in there Will! From what I heard you're a tough little fella and are going to stomp Sanfilippo into the dirt! You and your family are in our thoughts and prayers. As for Lisa and Joeseph, great job in the race and raising funding for Sanfilippo research! 2 years ago

Anonymous

ANONYMOUS

DONATION: $50

2 years ago

Chris Garcia

Chris Garcia

DONATION: $50

Tim, this is a heartbreaking story and hopefully it will lead to a cure. Very commendable of you to volunteer. I am happy to contribute. Chris 2 years ago

Allison & Vince Janis

Allison & Vince Janis

DONATION: $50

Will 2 years ago

Anonymous

ANONYMOUS

DONATION: $100

2 years ago