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Lisa Ducote's Fundraiser:

Fueled by WILL Power

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BENEFITING: CURE SANFILIPPO FOUNDATION

ORGANIZER: Timothy

Lisa Ducote

THE STORY:

As we enter the week of Thanksgiving, I look forward to celebrating all of the things we are most thankful for and at the top of my list are our healthy children.  Last year, one of my dearest friends found out that her seemingly healthy child was not so healthy as he was diagnosed with Sanfilippo Syndrome, a rare, genetic and terminal disease. 

Will Byers was just a happy-go-lucky little boy who loves grilled cheese sandwiches and Mickey Mouse and had his whole future ahead of him.  To discover that your beautiful child has a rare, incurable, degenerative disease is unimaginable and is something no parent should have to face.  In an instant, every dream parents have for their child, from playing little league to college graduation, becomes uncertain.  Sanfilippo Syndrome is a progressive disorder that starts to shut down the brain and central nervous system. Enzymes needed for cells to process cellular waste are missing or are poorly functioning.  Over time, waste build up leads to severe disability, robbing a child of the ability to walk, talk, and do everyday activities independently, eventually leading to early death.  The heart breaking truth is that without funding there is no treatment.  Without treatment, most Sanfilippo children do not reach adulthood.  But, even now, we find HOPE.  Please help us raise awareness and find a cure! 

All donations go directly to Cure Sanfilippo Foundation (Tax ID: 46-4322131, www.CureSFF.org), a non-profit 501c3 organization, and will be used to fund the most promising upcoming research and clinical trials for Sanfilippo Syndrome.  All donations are tax deductible. To learn more about Will’s story, please visit www.facebook.com/willpowermps.

I’m hoping to bring WILLpower to California this Thanksgiving and raise money for him and all of the other children affected by this awful disease by running a 10k in his honor.  I know the holidays are right around the corner and everyone has extra expenses but if you are able  to donate, any amount helps.  Thank you!! 

With WILL Power,

Lisa Ducote

 

DONATE

To This Fundraiser

$672

MONEY RAISED
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  • Anonymous

    $62

  • An old friend

     

  • Jeff

    $10

  • brent

    $25

  • Jody

    $25

  • Monica and Brian Weida

    $50

  • Chrissy Merrill

    $40

  • Anonymous

    $50

  • The Staffaroni Family

    $35

  • Anonymous

    $50

  • Carolyn

    $50

  • Lindsay and Paul

    $50

  • Allison & Vince Janis

    $50

  • Anonymous

    $50

  • Greg Ducote

    $50

  • Let's Go Will!

    $50

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134% Raised of$500 Goal

Fundraise for this Campaign

The Team: $16,409 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Tim Tirlia

Amount Raised

$7,650

 

153% Raised of$5,000 Goal

Fundraiser Title

Will Byers

Amount Raised

$3,635

 

727% Raised of$500 Goal

Fundraiser Title

Jennifer Colerick and Sheri Bell

Amount Raised

$1,855

 

186% Raised of$1,000 Goal

Fundraiser Title

Monica Bomkamp Enia

Amount Raised

$880

 

117% Raised of$750 Goal

Fundraiser Title

Jamie Gauthier

Amount Raised

$807

 

20% Raised of$4,000 Goal

Fundraiser Title

Lyndley Maddox

Amount Raised

$785

 

157% Raised of$500 Goal

Fundraiser Title

Lisa Ducote

Amount Raised

$672

 

134% Raised of$500 Goal

Fundraiser Title

Timothy Byers

Amount Raised

$125

 

1% Raised of$10,000 Goal

Donor Comments

Let's Go Will!

Let's Go Will!

DONATION: $50

4 years ago

Greg Ducote

Greg Ducote

DONATION: $50

Hang in there Will! From what I heard you're a tough little fella and are going to stomp Sanfilippo into the dirt! You and your family are in our thoughts and prayers. As for Lisa and Joeseph, great job in the race and raising funding for Sanfilippo research! 4 years ago

Anonymous

ANONYMOUS

DONATION: $50

4 years ago

Allison & Vince Janis

Allison & Vince Janis

DONATION: $50

Will 4 years ago

Lindsay and Paul

Lindsay and Paul

DONATION: $50

4 years ago

Carolyn

Carolyn

DONATION: $50

4 years ago

Anonymous

ANONYMOUS

DONATION: $50

4 years ago

The Staffaroni Family

The Staffaroni Family

DONATION: $35

4 years ago

Anonymous

ANONYMOUS

DONATION: $50

4 years ago

Chrissy Merrill

Chrissy Merrill

DONATION: $40

4 years ago