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Jessica Nelson's Fundraiser:

Fueled by WILL Power at The Woodlands Marathon!

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Jessica's Photo
Jessica's Photo
Jessica's Photo
Jessica's Photo

BENEFITING: CURE SANFILIPPO FOUNDATION

ORGANIZER: Will

EVENT: The Woodlands Marathon 2016

EVENT DATE: Mar 05, 2016

Jessica Nelson

THE STORY:

Last year I was pregnant with Tommy and training with a woodlands running group.  I ran along side my friend Valerie Byers and we chatted about anything and everything in the wee hours of dawn as we pounded in the miles.  It was then that I learned her son Will was in speech therapy and struggling through potty training.  I didn’t think much of it, as sometimes that happens with children.  Fast forward to months later, I heard a story I couldn’t believe.  Valerie had seen a segment on the Today Show where a little girl had a rare and deadly disease.  The symptoms were very similar to Will’s.  It stopped Valerie in her tracks because she knew in her heart that is what her son had.  Call it Mother’s instinct and divine intervention – Valerie was RIGHT.  She had her son, Will, tested and the results came back that he has Sanfilippo Syndrome (MPS III).   This is a progressive and fatal disease affecting 1 in 70,000 children.  Children eventually lose the ability to speak, walk and eat.  Most children with Sanfilippo Syndrome will die in their teens.   Valerie worked hard to get will into a clinical trial where she is praying for a medical miracle.  However, there is a lack of necessary funds for further research to be done.  In rare disease, funding from family foundations like Cure Sanfilippo Foundation are essential to developing treatment for children suffering from this deadly disease.  So, that’s where WE come in!  I’m lacing up my shoes and hitting the pavement once again for The Woodlands Half Marathon March 5th.  This time for a sweet little boy that needs a medical miracle.   Please consider supporting this cause by donating (it’s a tax write off too!).   Let’s change Will’s outcome!  Become fueled with WILL Power and donate today! 

 

Here are some FUN options:

 

1) $1 per Mile = Total of $13

2) $2 per Mile = Total of $26

3) $5 per Mile = Total of $65

4) $10 per Mile = Total of $130

5) Whatever your heart desires

 

 

To donate, please visit this link.

https://www.crowdrise.com/fueledbywillpower1/fundraiser/jessicanelson11

 

OR just call me and I’ll walk you though it

210-844-3526

 

Thank you SO much.   Your prayers and/or donations are greatly appreciated.

 

Jessica Nelson

#CureSFF #FueledbyWillPower

 

All donations go directly to Cure Sanfilippo Foundation (Tax ID: 46-4322131), a non-profit 501c3 organization and will be used to fund research and upcoming clinical trials for the treatment of Sanfilippo Syndrome.  All donations are tax deductible.  For more information on the Cure Sanfilippo Foundation, please visit www.CureSFF.org.

DONATE

To This Fundraiser

$560

MONEY RAISED
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  • Tom & Valerie Nelson

    $130

  • Castillo Family

    $75

  • Jennifer Freeman

    $25

  • Veronica Medrano

    $25

  • Johanna Schuepbach

    $25

  • Linda Cano

    $100

  • Mendoza Family

    $25

  • Angie Brinkmeyer

    $25

  • Nelson Family

    $130

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112% Raised of$500 Goal

Fundraise for this Campaign

The Team: $18,090 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Will Byers

Amount Raised

$6,165

 

41% Raised of$15,000 Goal

Fundraiser Title

Stephanie Matthew Peloquin

Amount Raised

$3,190

 

64% Raised of$5,000 Goal

Fundraiser Title

Laura Brents

Amount Raised

$1,500

Fundraiser Title

Aleah Esparza

Amount Raised

$1,225

 

123% Raised of$1,000 Goal

Fundraiser Title

Lisa Gauthier

Amount Raised

$900

 

113% Raised of$800 Goal

Fundraiser Title

Eve Kneller

Amount Raised

$890

 

178% Raised of$500 Goal

Fundraiser Title

Lyndley Maddox

Amount Raised

$830

 

166% Raised of$500 Goal

Fundraiser Title

Valerie Byers

Amount Raised

$800

 

80% Raised of$1,000 Goal

Donor Comments

Nelson Family

Nelson Family

DONATION: $130

3 years ago

Angie Brinkmeyer

Angie Brinkmeyer

DONATION: $25

What a great cause! Prayers for Will and good luck Jessica! 3 years ago

Mendoza Family

Mendoza Family

DONATION: $25

A wonderful cause, our prayers are with his family. 3 years ago

Linda Cano

Linda Cano

DONATION: $100

3 years ago

Johanna Schuepbach

Johanna Schuepbach

DONATION: $25

3 years ago

Veronica Medrano

Veronica Medrano

DONATION: $25

3 years ago

Jennifer Freeman

Jennifer Freeman

DONATION: $25

Prayers for a complete healing miracle for Will. 3 years ago

Castillo Family

Castillo Family

DONATION: $75

Go sister! WILLPower!! 3 years ago

Tom & Valerie Nelson

Tom & Valerie Nelson

DONATION: $130

Tribute to WIll 3 years ago