Caring for KarleiAnn
Organized by: Joel Guerin
This is KarleiAnn. She is a beautiful little girl who was born on October 11 weighing 6lbs12oz. She suffers from a condition known as microcephaly.
At her 25 week ultrasound scan, the doctors became concerned about her head development. Her mom began seeing a high risk obstetrician, but they couldn’t tell her anything other than her head was smaller than it should be. At 33 weeks it was determined that her fetal head size was less than one percent of the normal growth rate and this young mother knew something was wrong with her baby.
KarleiAnn’s mom was immediately tested for any environmental factors that could have caused her condition and Zika virus was thankfully ruled out. KarleiAnn has a healthy and robust two and a half year old brother named Rylei but her parents will be consulting with a geneticist to see if they can determine what went wrong.
This precious baby’s prognosis is unknown. At this time she is under the care of a renowned pediatric neurologist who was concerned to find that KarleiAnn has definitely suffered some degree of cranial atrophy meaning that some of her brain cells have died and her cranial sutures are overlapping meaning she has no soft spots and it’s possible her brain will never grow. She may have a host of new problems resulting from her microcephaly as she gets older, but we will have to wait and see how things progress.
So far KarleiAnn is doing what all babies do. She’s feeding well and sleeping okay. She’s cuddling with her mom and big brother. She’s making those sweet, soft noises that chubby, squishy newborns make. She passed her hearing tests. Soon she will visit a specialist to determine how badly her eyesight has been affected.
Her Dad took off work for her delivery but has been back every day since, trying desperately to provide for his young family. Her Mom will be out of work indefinitely as her body heals and then begins the process of learning how to meet the needs of her new daughter. There will be countless appointments and consultations and endless time and travel as they delve into their new normal. They will do so with humor and grace. They need no geneticist to determine the presence of those traits.
Unfortunately right now they are in desperate need of a newer vehicle. Their current van has over 200k miles and runs when it wants to (which isn’t often). They will need to purchase one as quickly as possible to ensure their daughter continues to make all of her necessary appointments. If you’d like to help out, please consider making a donation for them to purchase a more dependable car.
And if you can’t give, please keep them in your prayers.