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Thomas Boulware's Fundraiser:

Fund Courage for the Dysautonomia Advocacy Foundation

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Thomas Boulware

THE STORY:

Less than 18 months ago, I was introduced to the syndrome known as Dysautonomia. This incurable illness affects the autonomic nervous system which regulates many of our bodies daily functions. I learned that my old friend Ainsley Glenn had been stricken by this horrible illness seven years ago after being involved in an automobile accident, and it took nearly five years for her to receive a diagnosis. Historically this syndrome has been rarely known and has been difficult for doctors to diagnose and as a result many patients are left wondering what illness they are suffering from and will they ever be cured. Could you imagine what that must be like? To spend most of your time in the dark because light hurts your eyes, to be in constant pain, fluctuating blood pressure that can cause you to faint without warning. These are just a few symptoms that patients are stricken with and are forced to live with on a daily basis. Once Ainsley received her diagnosis, she was determined to bring awareness to Dysautnomia. She chose a path of purpose, and created the Dysautonomia Advocacy Foundation(DAF) and asked me to serve as a board member. Through the use of social media, we have created a forum or a place for others around the world to collaborate about this disease and how it affects each of them. We have been in contact with more than 22,000 users and it has been incredible to see the impact that we have made on others lives. AROUND THE WORLD! DAF has created a relationship with Dr. Blair Grubb of the University of Toledo. He is at an exciting point in his research identifying important antibodies that could lead to a biochemically based diagnosis. Currently Dr Grubb is at a critical point in his research and needs funding to continue his pursuit. Please join me in supporting our fundraising efforts during the month of October and Fund Courage.

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To This Fundraiser

$1,550

MONEY RAISED
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  • Dexter & Sara Rumsey

    $500

  • Scott and Earle Oxner

    $100

  • Edgar & Nicole Morris

    $100

  • Yount

    $50

  • Amey and Reid Warder

    $100

  • Jamie and Tony Jones

    $500

  • William Ward

    $200

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Fundraise for this Campaign

The Team: $1,550 TOTAL RAISED SO FAR

JOIN THE TEAM

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Donor Comments

William Ward

William Ward

DONATION: $200

3 years ago

Jamie and Tony Jones

Jamie and Tony Jones

DONATION: $500

3 years ago

Amey and Reid Warder

Amey and Reid Warder

DONATION: $100

3 years ago

Yount

Yount

DONATION: $50

3 years ago

Edgar & Nicole Morris

Edgar & Nicole Morris

DONATION: $100

3 years ago

Scott and Earle Oxner

Scott and Earle Oxner

DONATION: $100

3 years ago

Dexter & Sara Rumsey

Dexter & Sara Rumsey

DONATION: $500

3 years ago