BENEFITING: Potocki Lupski Syndrome Outreach Foundation Inc
I greatly appreciate your support. One by one we can make a difference for children with Potocki-Lupski Syndrome, often misdiagnosed as autism and in need of resources to support patients, parents, physicians, and educators. We have teamed up to fundraise for this cause with the Potocki-Lupski Syndrome Outreach Foundation, a non-profit 501(c)(3) organization dedicated to furthering research while supporting and educating the medical community and families who have loved ones diagnosed with Potocki-Lupski Syndrome (PTLS), a rare genetic disorder first diagnosed in the United States in 1991. Our family is impacted by this syndrome, and the money raised will help educators understand how best to support this special group of children during school-age and beyond. Thank you!