One mile Family Friendly walk at the beautiful Burke Lake Park. Afterwards enjoy music, train rides, refreshments, delicious treats and some guest appearances for the kids.
Registration opens at 8AM and the walk begins at 8:30AM. As you enter the park, please tell the guard you're attending the FRAGILE X WALK to avoid paying the entry fee if you live outside of Fairfax County.
Coffee will be provided at registration. After the walk enjoy music, train rides,face painting, refreshments, snacks treats at the end of the walk.
Long sleeved cotton T-shirts will be given at Registration. There are changing tents for your convenience so everyone is showing awareness for our loved ones with Fragile X.
Thank you for registering and we're looking forward to seeing you!
Welcome and thank you for visiting our site, we hope to see you at the 2016 Walk on April 24th! Fragile X Families of Northern Virginia is a group of families who all have the same passion to make a better world for our children, adults and loved ones with Fragile X Syndrome. Our group is focused on funding research. We have raised more than $130,000 since our first Walk. The money raised has been used for many great things but we are excited that our group fully funded the founding of the first national Molecular Biomarker Project. The project is a partnership between the National Fragile X Foundation and several Fragile X clinics across the country. We hope to continue to fund this project to help our research teams make advancements in clinical trials.
Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral challenges and various physical characteristics. FXS is the most common known genetic cause of autism. It's impact can range from mild to severe. Over 1 million individuals nationwide have, or are at risk, of carrying the Fragile X mutation. As many as 1 out of 151 women and 1 in 468 males are carriers of the Fragile X gene and are at risk.
Please join us to help raise both awareness and critically needed research dollars!