BENEFITING: CYSTIC FIBROSIS FOUNDATION
EVENT DATE: Jun 02, 2013
Once again I will be walking in this years Cystic Fibrosis Foundations annual Great Strides Walkathon on Sunday,June 2nd and I'd like for all of you to join me in the walk.
Last year we had the biggest breakthrough in the history of CF. The FDA approved the FIRST ever drug that targets the root cause of CF.This year they are expanding this drug for other mutations. The FDA has also changed some of their regulations, so that these drugs in the pipeline can get to the patients sooner. Through donations to the Cystic Fibrosis Foundation, CFF was able to help fund the research behind these drugs.
As some of you may know, for the last 3 years I was on a trial drug which has simply been amazing! (so, thank you) Well, the three years are up, and the trial is over and it is back to the drawing board. Not to worry, I will never give up and I will still continue to run, swim, travel etc. As I like more than nothing in this world than to prove people/Doctors wrong!
I started walking in the CF Great Strides walk around age 9.(life expentancy was late teens then) Back then, raising money was in hopes to find a cure-fast foward to today, and thanks to all your donations, this dream is getting closer to becoming a reality. I honestly never thought I would really be able to see this day when your money and support is making a HUGE difference in both mine and many others living and breathing with CF.(and life expectancy has doubled! late 30's/40s)
The science is getting better, technology is incredible and having all your support throughout the years has been absolutely AMAZING! I am deeply touched, and honored to have people like you help change the future of this disease.
Please Donate, walk, spread the word! Every little bit counts!!! And again, thank you ALL for everything, it means more to me than you can imagine .
THANK YOU! --- I cant wait for the day that "CF" no longer stands for Cystic Fibrosis, but rather Cure Found!
So, team "Gabbys Go Getters"----LETS GO GET EM!!!!!!!!!!!!!!!!!!!
(Photo: Me and my two doctors:) )