Skip to content
katiewatt1's profile image - click for profile

Katie Watt's Fundraiser:

GAN WARRIORS

Katie's Photo
Katie's Photo
Katie Watt

THE STORY:

GAN Warriors


Published on Monday, 23 July 2012 13:58
Written by Administrator
In 2011, Levi Spencer and his younger twin brothers, Aaron and Alan were diagnosed with an extremely rare nerve disease known as Giant Axonal Neuropathy. Their parents, Jason and Charee, were faced with the devastating news that their three beautiful little boys would slowly lose all ability to move, eventually needing feeding tubes and ventilators and most likely dying before the age of twenty.

Hope – and a fighting chance for our three GAN Warriors – exists in the efforts of Matt and Lori Sames and Hannah’s Hope Fund for GAN, the non-profit organization the Sames’ started in 2008 when their daughter was diagnosed with GAN. Hannah’s Hope Fund has worked tirelessly to fund and organize research to treat GAN. Human clinical trials for a gene therapy cure that will hopefully halt the progression of the disease are scheduled to begin in 2013.

Our mission is to support Hannah’s Hope Fund in finding a cure for Giant Axonal Neuropathy. Through fundraising and awareness efforts we want to give Levi, Aaron & Alan and all other GAN children hope for their futures.

Give now. Give Hope.

DONATE

To This Fundraiser

$1,028

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Cindy Jessop-Thomas

    $26

  • Richard

    $100

  • cami spencer

    $25

  • cami spencer

    $10

  • Dane Watt

    $20

  • Anders Watt

    $20

  • Walter Watt

    $15

  • Don Wilson

    $50

  • Lily Bunker

    $50

  • Denver

    $100

  • Alania & Scott

    $50

  • Mary Allred

    $50

  • Anonymous

    $100

  • Jim and Zina

    $20

  • Robin Smith

    $10

  • Camille McCollum

    $26

  • Mancave

    $50

  • F L Kauffman

    $25

  • Mike Spaulding

    $100

  • Ericka Dowd

    $25

  • Ms Oregon Plus America

    $25

  • justine nuttall

    $10

  • jenny jessop nuttall

    $36

  • J.D. NUTTALL

    $10

  • Function First Home Planning

    $30

  • Kristina Robinson

    $20

  • Corinne Welborn

     

  •  
  •  
  •  
 

9% Raised of $11,918 Goal

Fundraise for this Campaign

The Team: $1,028 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Cindy Jessop-Thomas

Amount Raised

$581

Fundraiser Title

Katie Watt

Amount Raised

$236

 

2% Raised of $11,918 Goal

Fundraiser Title

cami spencer

Amount Raised

$135

Fundraiser Title

jenny jessop nuttall

Amount Raised

$76

Donor Comments

Corinne Welborn

Corinne Welborn

For 3 brave and handsome little boys, Levi, Aaron and Alan! 3 years ago

Kristina Robinson

Kristina Robinson

DONATION: $20

4 years ago

Function First Home Planning

Function First Home Planning

DONATION: $30

Best wishes to everyone involved! Good Luck! 4 years ago

J.D. NUTTALL

J.D. NUTTALL

DONATION: $10

4 years ago

jenny jessop nuttall

jenny jessop nuttall

DONATION: $36

4 years ago

justine nuttall

justine nuttall

DONATION: $10

4 years ago

Ms Oregon Plus America

Ms Oregon Plus America

DONATION: $25

Miss ya Cindy! 4 years ago

Ericka Dowd

Ericka Dowd

DONATION: $25

Katie--You are amazing! 4 years ago

Mike Spaulding

Mike Spaulding

DONATION: $100

4 years ago

F L Kauffman

F L Kauffman

DONATION: $25

4 years ago