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jenny jessop nuttall's Fundraiser:

GAN WARRIORS

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THE STORY:

Katie Watt wrote -

GAN Warriors


Published on Monday, 23 July 2012 13:58
Written by Administrator
In 2011, Levi Spencer and his younger twin brothers, Aaron and Alan were diagnosed with an extremely rare nerve disease known as Giant Axonal Neuropathy. Their parents, Jason and Charee, were faced with the devastating news that their three beautiful little boys would slowly lose all ability to move, eventually needing feeding tubes and ventilators and most likely dying before the age of twenty.

Hope – and a fighting chance for our three GAN Warriors – exists in the efforts of Matt and Lori Sames and Hannah’s Hope Fund for GAN, the non-profit organization the Sames’ started in 2008 when their daughter was diagnosed with GAN. Hannah’s Hope Fund has worked tirelessly to fund and organize research to treat GAN. Human clinical trials for a gene therapy cure that will hopefully halt the progression of the disease are scheduled to begin in 2013.

Our mission is to support Hannah’s Hope Fund in finding a cure for Giant Axonal Neuropathy. Through fundraising and awareness efforts we want to give Levi, Aaron & Alan and all other GAN children hope for their futures.

Give now. Give Hope.

DONATE

To This Fundraiser

$76

MONEY RAISED
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  • justine nuttall

    $10

  • jenny jessop nuttall

    $36

  • J.D. NUTTALL

    $10

  • Kristina Robinson

    $20

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Fundraise for this Campaign

The Team: $1,028 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Cindy Jessop-Thomas

Amount Raised

$581

Fundraiser Title

Katie Watt

Amount Raised

$236

 

2% Raised of $11,918 Goal

Fundraiser Title

cami spencer

Amount Raised

$135

Fundraiser Title

jenny jessop nuttall

Amount Raised

$76

Donor Comments

Kristina Robinson

Kristina Robinson

DONATION: $20

5 years ago

J.D. NUTTALL

J.D. NUTTALL

DONATION: $10

5 years ago

jenny jessop nuttall

jenny jessop nuttall

DONATION: $36

5 years ago

justine nuttall

justine nuttall

DONATION: $10

5 years ago