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Gary O'Brien - NFE | 2016 Maryland IronMan & 2016 TCS NYC Marathon

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Thank you!!
January 17, 2017

Dear all, Apologies for such a delayed note. I wanted to send my sincere gratitude to you all for your kind donations to the Children’s Tumor  See more

BENEFITING: Children's Tumor Foundation

EVENT: NFE | 2016 TCS NYC Marathon

EVENT DATE: Nov 06, 2016

Gary O'Brien

THE STORY:

Swimming, cycling and running for William Carroll and other Children battling NF. I will be taking part in the 2016 Maryland Ironman and along with The Children's Tumor Foundation's NF Endurance Team, I will be running the 2016 TCS New York City Marathon to end NF through research. 

 

Neurofibromatosis, or NF, encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves anywhere on or in the body, causing in moderate to severe cases disfigurement; blindness; skeletal abnormalities; dermal, brain, and spinal tumors; loss of limbs; malignancies; and learning disabilities.

 

NF can appear in any family. NF occurs in 1 in 3000 births; is worldwide in distribution; affects both sexes equally; and has no particular racial, geographic or ethnic distribution. 

 

The Children's Tumor Foundation is a non-profit organization dedicated to Ending NF Through Research, and to improving the health and well-being of individuals and families affected by NF.

 

Our mission is to advance peer-reviewed research to develop treatments and cures for NF; support persons with NF and their families by making thorough and accurate information readily available; assist in developing clinical centers and best practices to improve access to quality healthcare for those who live with NF; and expand public awareness of NF to improve diagnoses, increase understanding of the challenges that NF presents, and encourage support for NF research.

 

There is currently no effective treatments nor a cure, but you can help!  Support our team today!

 

1. You can click on the DONATE button to contribute what you can on behalf of one of NF Endurance team members.

 

2. You can REGISTER to become join the team yourself and help us raise the much-needed funds and spread the word about this cause.

 

3. You can volunteer your time during race week and on race day to welcome, support and encourage our runners.

 

Please email us at nfendurance@ctf.org with any questions!

 

Thank you!

DONATE

To This Fundraiser

$8,550

MONEY RAISED
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  • Anonymous

    $50

  • Frigilicious

    $50

  • Anonymous

    $750

  • Steve A

    $100

  • Bouf

    $50

  • Nick D

    $50

  • Starlo

    $50

  • Sienna

    $50

  • Wooders

    $40

  • Stuart, Katie and Bruce

    $50

  • Sloffy

    $50

  • Ma en Pa

    $50

  • The Trouble & Strife (& MacTruck)

    $250

  • Danielle K

    $50

  • Scotty

    $50

  • Klemster

    $50

  • Brigitte Guldin

     

  • Caroline and Colin

    $50

  • Founder member of world's best cinema club

    $50

  • Friend

    $50

  • Brandon Roberts

    $50

  • Fridgilicious

     

  • The Starlings

    $50

  • Laura Anket

    $50

  • Gabriel Bousbib

    $150

  • Pamela mcglashen

    $100

  • Richard Leibovitch

    $300

  • Staunts

    $50

  • Kat

    $25

  • Big Bear

     

  • Kenny King

    $50

  • MGP Boys

    $250

  • Scott Kerr

    $50

  • Harsh

     

  • Friend

    $100

  • Brocky & Big JL

    $50

  • Mike Lorraine

    $100

  • Matt and Kaitlyn

    $50

  • Richie & Immy

    $50

  • Grandma and Pop Pop

    $50

  • Phillip & Colleen Brill-Edwards

    $250

  • John Cotronis

    $70

  • Paul Reynolds

    $50

  • The Chops Clan

    $100

  • Ed Shone

    $75

  • Hesho

    $50

  • Charlie

    $50

  • Alessandra tocco

     

  • Tom C

    $100

  • Cate

     

  • Lion

    $40

  • Karl Drinkwater

    $50

  • Mick Lee

    $200

  • Donald Cole

     

  • cmay

    $100

  • John Amorosa

     

  • Dean Charnock, D C Maintenance

    $50

  • Anonymous

    $100

  • Tuk, Prue and Jemima

    $25

  • Mocky, Flic & Chaz

    $50

  • Peter William Bennett

    $1,000

  • Timothy Reilley

     

  • Anthony

     

  • Potter

     

  • Nathan and Alice

    $50

  • Adam Bailey

    $550

  • Croc

    $250

  • Goat & family

    $40

  • Anonymous

    $75

  • Anonymous

    $135

  • Padraig Hickey

    $50

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171% Raised of $5,000 Goal

Donor Comments

Padraig Hickey

Padraig Hickey

DONATION: $50

1 year ago

Anonymous

ANONYMOUS

DONATION: $135

1 year ago

Anonymous

ANONYMOUS

DONATION: $75

1 year ago

Goat & family

Goat & family

DONATION: $40

2 years ago

Croc

Croc

DONATION: $250

Great effort mate 2 years ago

Adam Bailey

Adam Bailey

DONATION: $550

2 years ago

Nathan and Alice

Nathan and Alice

DONATION: $50

Good Luck!!! 2 years ago

Potter

Potter

2 years ago

Anthony

Anthony

2 years ago

Timothy Reilley

Timothy Reilley

2 years ago