Fighting Advanced Esophageal Cancer Going on 3 years now!
Organized by: Loraine Farmer For Tim
Tim gained his wings Oct27th Family still struggles day to day. Thanks to everyone for your love, prayers, and support through these tuff 3 years.
November 10, 2016
Tim left this world of pain and sickness October 27, 2016. He left in five short days from the day it was discovered he had a small tumor on the back right side of his brain. It was a very peacefull passing for him, surrounded by his loved ones. Although the sadness of him being greatly missed and deeply loved will follow forever. Thank you to every one that have supported us through love, prayers, and financial support. We will never forget. Love and hugs to all.
O,ctober is here! Ready for cool weather! Tumor boad found no chemo. That would probably explain why he is still stage iv after2 1/2 years of chemo. Not sure his body could handle it anyway. Homeopathic is all we have left with natural vitamin infusions and supplements. Some studies have shown to kill cancer cells, but at least we know it will make him feel better being chemo has depleted him so. Yet another problem, insurance does not pay for any of it and it is expensive! Thanks to your help with this fundraiser, he got in to see a Dr. And had his1st infusion. 1$95 infusion every week, 1 $75 every other week and $250 in supplements a month. We are taking it week by week and have not been able to start the 2nd iv or the supplements. Just first visit and labs were expensive. Its so unreal that insurance will not help with what chemo has damaged. He also has a consult in Oct to see if targeted radiation will help shrink the tumor in the esophagus, so he can eat. We know it has increased in size when certain foods he used to be able to eat, just won't go down. It packs and has to come up and out because of the pain. Thus another reason he needs these supplements. He's already stated he does not want a feeding tube. Please share our story and we will keep you updated.
September is here and Nov will be 3 years fighting this beast! With the weight loss. his body can't handle more chemo. Still have not heard from the tumor board that are studying his bops. He has an appointment to receive vit C IV but insurance does not cover it. 1st visit is $225 and infusions are $95 each time. Dr. will probably want him to take it twice a week. We are trying to sell what we can in order to pay for these infusions. Not sure if the Dr. will want other types of infusions to go along with the vit C or now, but we want to be prepared. Thank you all for your prayers, love, and support throughout this journey.
4-18 Going for clinical trial in NY. Praying that this trial will work. Not sure how long or if there will be a transfer to somewhere closer but, I pray it works. EC just has not been studied much until the last year. By God's grace , the Dr's and medical science he has done a lot better than was expected. So good to have gone through all the chemo offered, no radiation nor surgery along with going into almost 3 years. Can't see too far ahead, only one day at a time, with a lot of prayer and God's guidance. Thank each one of you for prayers and support.
Update 4-12 ....EC is active in 3 places . He has taken all the chemo available to him for EC at the present place. We are now looking at clinical trials. Not sure what state or anything, but we have to keep fighting!
Please share. We are so very thankful for the past 2 years support and our God answering prayers. We have made cuts in our monthly finances but we still continue to struggle from month to month. So much in not covered under medicaid/medicare and I have yet to find any programs to help with travel, supplements or over the counter meds. He is still stage IV and we still need your support and prayers. This is an every day battle.
Tim was diagnosed Nov 2013 with advanced stage IV Esophageal cancer. We have been so blessed, as all Doctors that we meet, are so suprised he looks as good as he does. He has been on chemo 2 1/2 years now. After the first year of chemo treatments he went into remission only to find it back in 2 months full blown! Treatments are every week and scans and Dr. appointments in between. This "new" chemo seems to be holding the cancer so far, as it has not gotten any larger in all the places, so we are pushing through!
As if all this wasn't enough for us to handle, in 2013, I started having more pain and have found I'm having severe spinal issues along with severe degenerative disease and need to see a neurosurgeon and pain management. I can't work and am fighting disability as it is the only way to get insurance so I can see a neurosurgeon. Our state did not opt in for Medicaid expansion (which I am eligable for) and Tim's SSDI is not enough to cover everyday living expense, supplements and the travel to treatments every week. It's so hard to stay on budget when there is not enough to cover it all. Even our electric has been cut off twice. There is only one choice 1st between living expense and getting chemo treatments. We live in a rural area so we are a good 40 miles away from treatment and Dr.'s/hospital. Just last year his port became exposed and they had to do emergency removal and replace another port. I have searched so long for some type of gas assistance to no avail. The liheap electric help is once a year and there were no funds when I tried to apply in Jan. Salvation Army intake for our area is in Albany. I was told that a simple email would allow intake in Tifton, we are there every week so it would be a lot easier to do intake, but I can't seem to get in touch with the right people ( seems to be my story along this journey) We had a small business and we have pretty much lost everything we worked so hard for. We had just moved into an older mobile home to fix as we go when he was diagnosed. We still haven't been able to finish the repairs but, I'm not complaining . I thank God for every day we have to enjoy our grand kids.
If you can help just a little, it would mean so much with this month to month expense going on 3 years now, just to survive. There are no programs to help, like most would think. I never knew what someone fighting cancer like this had to go through. It's heart breaking that we live in a country with no help when we are down. We are middle aged and have never been in this situation and had to live like this, let alone ask for help. We have always worked hard and survived. Now it's too many fights in different directions to survive and so very overwhelming.
Esophageal Cancer has not been in the spotlight , but lately it has gained attention because of it being on the rise and is such an aggressive cancer. Some people have no symptoms and a lot have what Tim had, which was the feeling of food getting stuck in the esophagus when eating. Sometimes the pain is so bad it has to come up. Some people need a feeding tube because the growth closes the esophagus where nothing can pass. Some have to have extensive surgery and some chemo meds are still not approved by some insurance. This cancer also has a mind of it's own, while being aggressive at the same time. Thanks to the awareness and recent research more chemo is being offered at fighting this beast.
Update Nov 5th: 1 Chemo has really bad side effects with BP jumping around like crazy . It was cut back but it is still bad. No energy after chemo for almost the rest of a week. Can't hold out to do the things he loved and can't handle the cold weather. All the meds that go along with the comfort of this cancer is unreal. You truly cannot understand until you have walked and lived with this beast of a cancer. I started a FB page For people that have been effected by EC in some way to help spread awareness.
Please share https://www.facebook.com/refluxcankill/?fref=ts
Update Oct 5th: Another month of chemo and then scan. We are anxious to see what this chemo has done. We are hopeing it has done as good as he looks. We were also told that chemo will not stop, even if there is another remission. Everytime we see the Dr. it's like reality all over again. You try to forget how bad the bid C is while you fight it and then the Dr. visits remind you. :-/
Update Sept 22. 2015 : Last chemo fusion for this round. Will see the Dr. next month and schedule a scan to see if and where there may be cancer cells, or how the chemo had worked. He is so very tired and unable to hold out long to do much. Lots of protein shakes help. Thank you for your support!
(update) Two place have begin to grow again so his current treatment has stopped and a new treament has started . He now goes ever week for a 2-4 hr infusion. This one is hard, but not as hard as the very first one. This cancer has managed to strap us even more. Any amount of donations will be so greatly appreciated! Along with continuned prayers as we are going on 2 years fighting. Thank you all for your support!