EVENT: Trick or Trot 5K Run/Walk
Michelle, Gavin, Kiera, Haley DourisRumer
myself, Michelle Douris and my friend Ilyse Drennan are joining together to form a team to helpfight for my son and her husband 10 Years ago my son Gavin was born and shortly after diagnosed with severe hemophilia A. At the time I had no idea what that even meant let alone the quality of life he would heve. Now I know all too well. Hemophilia means that your blood does not clot ot clots a lot slower than "normal" people. Thw multiple bruises are nothing compared to the spontaneous internal bleeds that can occur for no reason. Gavin has had multiple operations, spent plenty of time at CHOP and also withstands a lot of pain causing him to need crutches, wheelchairs, braces, hospital visits, missed school and being able to play like a regular boy. His condition will never improve, it is lifelong and the only treatment right now is IV infusions I preform at home every other day. The purpose in this fundraiser is to raise money and support for chidren and adults like him. towards research, camps so others can meet that are in the same situation and bring the community togethet in hopes to one day find a cure or a more tolerable form of medication. Mike is 38 years old and is moderate factor 9 deficient. He also suffers from Degenerative Disc Disease and Fibromyalgia, both Chronic Pain conditions. Under normal circumstances, Mike would be able to have surgery and take medication to help ease his pain. However, due to his hemophilia, surgery and pain medications are not an option so he lives with pain and discomfort every day. Last year, Mike had 2 hospitalizations due to internal bleeding that had occurred. Being used to external bleeds all his life, internal bleeds were a very scary and unknown territory for Mike. Please help support Gavin, Mike, and all of those people out there who live with hemophilia!