Gavin Flying for a Cure is a foundation created in honor of Gavin Quimby who died of metachromatic leukodystrophy(MLD) at age five. Gavin's parents, Nick and Shanna, want to help other children with MLD have a fighting chance to get effective treatment so they started The Gavin Quimby Research Fund to further advancements in MLD research. They have donated money to Dr. Allesandra Biffi at Boston Children's Hospital to bring gene therapy to the United States. Dr, Biffi's gene therapy treatment has saved the lives of many children and Nick and Shanna hope it will save many more. Although they lost their son Gavin to this devastating disease, they are working towards finding a cure so that no other parents will need to lose a child to MLD. All donations and registration fees will go to Dr. Biffi to continue her efforts in finding a cure for this terrible disease. To see more information on Gavin Quimby go to gavinflyingforacure.com or his Facebook page, Gavin Flying for a Cure.