Dear friends & family, please take a moment and watch this heart wrenching video about our incredible friends and their beloved & beautiful daughter Mila.
Mila was recently diagnosed with Batten disease a rare and terminal neurodegenerative disease with no cure. Julia, Mila's Mom, has setup Mila's Miracle Foundation to help raise funds for research and to start a clinical trial right away and every donation helps. Existing clinical trials have slowed the progression of the disease but not for the variant that Mila has. Julia has found a principal scientist to run the trial. All she needs is monetary support of $550k by May or the trial is on hold.
I met Julia in my early months of motherhood with Cayden. And together we shared the ups and downs of raising our babies. Cayden and Mila both shared the same energetic spirit and through this friendship it created an amazing group of mamas all with babies the same age. Julia was the glue that tied all of us together and created our village. What they are going through is unimaginable as a parent. Please help find a cure for Mila and other children with this terrible disease. Cayden has been training and is ready to run the BolderBoulder 10k this year for Mila. Come join us!