Kleefstra Syndrome Virtual Walk-and-Roll: September 17-25, 2016
GeneSpark.org, an international non-profit foundation, is raising money to fund scientific research projects aimed at advancing a drug treatment for Kleefstra syndrome (KS). KS is a rare genetic condition caused by a mutation or deletion of the EHMT1 gene. KS patients have intellectual disabilities, speech impairments and various other neurological and physical abnormalities, including walking difficulties, heart defects, kidney/urological defects, respiratory infections and seizures. There is no treatment today, however, scientists do know enough to begin working towards developing a drug. Funding is the biggest hurdle and, as such, your donation and support can put a treatment within reach.
From September 17-25, 2016, GeneSpark.org will host its first annual virtual "Walk-and-Roll". Families affected by Kleefstra Syndrome will walk or roll (wheelchair, stroller or cycle!) their way across a self-designated 5K (3.1 miles) route in their local communities. Proceeds raised will go towards developing a drug to treat KS. Consider a donation on this page or start your own fundraising team by clicking on the "Start Your Fundraiser" button.
We accept tax-deductible donations from U.S. taxpayers through our partnership with Charities Aid Foundation America (CAF America), an independent U.S. registered charity (registration number 43-1634280). All donations are receipted by email and are directed to the GeneSpark.org Fund at CAF America.