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GeneSpark Foundation's Fundraiser:

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GeneSpark Foundation

THE STORY:

GeneSpark.org, an international non-profit foundation, is raising money to fund scientific research projects aimed at advancing a drug treatment for Kleefstra syndrome (KS). KS is a rare genetic condition caused by a mutation or deletion of the EHMT1 gene. KS patients have intellectual disabilities, speech impairments and various other neurological and physical abnormalities, including walking difficulties, heart defects, kidney/urological defects, respiratory infections and seizures. There is no treatment today, however, scientists do know enough to begin working towards developing a drug. Funding is the biggest hurdle and, as such, your donation and support can put a treatment within reach.

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To This Fundraiser

$111,289

MONEY RAISED
  • Kleefstra Virtual Walk 2016

    $111,289

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The Team: $111,289 TOTAL RAISED SO FAR

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Donor Comments

Kleefstra Virtual Walk 2016

Kleefstra Virtual Walk 2016

DONATION: $111,289

2 years ago