BENEFITING: ARTHROGRYPOSIS MULTIPLEX CONGENITASUPPORT
EVENT DATE: Jul 03, 2013
Ben was born with a rare genetic disorder (AMC) that leaves him with no movement in his arms, hands, or fingers. They have a convention every year for people with AMC. We are trying to go this year and are tight on cash..... We would love for Ben to meet people who have the same limitations so he can see that he is not the only one in the world...... We will also be able to learn more about AMC from other parents and doctors.