BENEFITING: GETTY OWL FOUNDATION
EVENT DATE: Nov 16, 2014
Join Team Getty to support Getty Owl Foundation in its fight to end Spinal Muscualr Atrophy (SMA), help affected families, and raise SMA awareness worlwide. SMA is the #1 genetic killer of young children and has no treatment or cure.
Our foundation was created honor of our daughter Getty, who fights SMA every day. We also know there are thousands of other SMA warriors, just like Getty who deserve a cure today.
Getty Owl Foundation works hard to make sure people are aware of this genetic killer. We also raise funds to help advance research so one day all of our kids can live long and healthy lives.
Spinal Muscular Atrophy is a degenerative muscular disorder that weakens a child's immune system, muscles, and overall ability to walk, swallow and breathe.
However even with all of the perhaps grim statistics, there is so much hope. Getty, like so many of her friends live longer, attend school, operate power chairs. Most importantly children with SMA are not congitively impaired. This gives them an incredible ability to strive and accomplish so much with the help of technology.
Getty Owl Foundation is built on core values that anything can be achieved.
We hope you will stop by our website gettyowl.org and learn more about our amazing daughter, our family and our fight against SMA. We are proud of what our foundation has accomplished so far and are so very hopeful for the future.
We are an all volunteer organization and we are striving to raise over $10,000 for 2014. The money will go into the hands of families that are in need of life saving machines and supplies for their children. Also, the money raised will allow us to contribute to SMA research.
We thank you in advance for your support.
We are currently recruiting runners for the Big Sur Half Marathon on November 16th. http://www.bigsurhalfmarathon.org. Watch out, cheer for, and/or join our team of dedicated Team Getty Runners. We are a committed and mighty group that fights every day for those who can't, but one day will.