UGLY CRY HAPPENING OVER HERE!!
October 26, 2016
BENEFITING: GIRL POWER 2 CURE INC
ORGANIZER: Girl Power
Girl Power to Cure is competing to win $1million dollars in the Revlon Love is On Challenge. We need this money to help Cure Rett Syndrome. Please read our story below and consider donating to a very worthy cause, and help us win 1 Million Dollars from Revlon!!!
On July 7th, 2014, our world was forever changed when a genetic test confirmed that our sweet girl of 3 1/2 years had Rett Syndrome.
Rett Syndrome is a terrible thing. It sneaks up on you slowly. The word they use on the website is “insidious”. Rett Syndrome affects 1 in 10,000 girls. It has been described as Parkinson's, Autism, Apraxia, and Epilepsy all rolled into one devastating disease. Most Rett girls never speak, and have very limited use of their hands and fingers. Half are confined to wheel chairs. Rett girls experience life-long motor skill issues, heart arrhythmias, breathing irregularity, scoliosis, digestive problems, seizures and a host of other symptoms including the possibility of sudden death. Severity ranges and is hard to predict, but Rett girls are never able to live independently. But, they are extremely smart. Our Blake knows exactly what is going on around her, but has no voice to prove it, and she is trapped in a body that she can hardly control.
Today, we hope in a cure on this side of heaven. And there is real hope for that cure. Rett is the very first brain disorder to be reversed in mice. A CURE is within reach! Rett girls are intelligent and aware. They can learn as well as all other girls… they just can’t tell you so.
Please help us raise money for research, so a CURE can be found and we can unlock our precious little girl!