Amy Durham wrote -Ethan and I want to do everything we can to raise awareness for the number one defect that takes more children's lives each year than all forms of that awful monster, cancer. Not only do we want to help find a cure for congenital heart defects, we also want to honor my late husband and the best daddy in the world. His name is Dillon and he passed away, unexpectedly, in October 2013. He had a heart attack. There was no warning, much like with our fighter, Ethan, who was born with Transposition of the Great Arteries, one of the seven critical congenital heart defects. To our knowledge, however, Dillon's issue was not congenital.
One of the things on this earth that Dillon was passionate about is our heart community. Every time I'd come across a story of another child diagnosed or lost to a heart defect, it just hurt his soul and he longed to DO SOMETHING to make it better. He was an avid volunteer/supporter of our local heart group, Amazing Little Hearts, and was always ready to lend a hand, share our story or just a smile with anyone who needed it.
His 40th birthday would have been 9/10/14. We want to raise as much money as we can to honor what a great dad he was- he was Ethan's biggest supporter and hero. Please, help us celebrate him!
Today, Ethan is doing well. It's hard to tell he was so sick as an infant. If you lift up his shirt, you'll get a glimpse of his badge of courage, in the shape of a vertical line down the center of his chest. Two open heart surgeries by 4 months old. He lost Dillon when he was 4. He has battled way too much for such a little man but he does it well and with a smile on his face.
What is a "Dillion," you ask? Well, a long-standing joke involving the often misspelling of Dillon's name has evolved into this fundraising campaign. We always said, when something wasn't able to be measured monetarily, that it was worth a "dillion dollars." Well, I'm asking you to give whatever you can- whether it be $4 or $40 (because it's his 40th birthday). In our eyes, your support is worth a dillion. Please do it in memory of my Dillon and in honor of my "Dillion Dollar Kid," Ethan.
100% of what you give will go towards CHD research. Please give if you can. Thank you so much for your support!!!
Amy and Ethan