BENEFITING: DYSKERATOSIS CONGENITA OUTREACH INC
ORGANIZER: DYSKERATOSIS CONGENITA OUTREACH INC
DYSKERATOSIS CONGENITA OUTREACH INC wrote -
We have a challenge for you! We need your help, support and most of all cash!!! Thanksgiving is upon us and as we enter into this holiday season of love, compassion, and giving we would like to direct yourselves to Dyskeratosis Congenita Outreach (DCO). Whether or not you are happy with our civic climate, one thing is certain: DCO always be there for our rare families. With a gift to DCO, you are supporting the awesome works DCO provides to its families. $5, $10, $20, $50, $100; it doesn't matter. Please support DCO in whatever monetary amount you can manage.
This year we are strongly encouraging families & friends to make a donation to Dyskeratosis Congenita Outreach (DCO) so our group can continue to exist as a non-profit organization. We have been operating on a shoestring budget, but without the additional funds we will be in the negative and would not be able to operate and provide all of the outstanding services to families as we have had done in the past. Your donation to DC Outreach's provides hope and support to a community that often feels alone. Most of us had never met another person with this disease until we found DC Outreach. Dyskeratosis Congenita is so rare that we find ourselves to be the only DC patient in a room full of rare diseases. At present there is no cure and virtually no scientifically proven treatments for DC, in fact those who know we have it are considered lucky, as most cases go undiagnosed for years. Dyskeratosis Congenita (DC) and Telomere Biology Disorders (TBD) are devastating, genetic diseases with severe, and often fatal, symptoms. They attack people of any age, but occur more frequently in children. The disease manifests throughout the body and can cause bone marrow failure, pulmonary fibrosis, liver problems, susceptibility to various cancers, and a host of other serious issues. Its symptoms often masquerade as other illnesses, and because of its rarity, most doctors have never seen a case. DC Outreach is focused on providing resources to all those affected by DC & TBD, raising awareness of the condition and sharing educational material with patients & physicians. Our efforts are all volunteer based and all money raised goes towards our outreach efforts. For more information, please see https://www.dcoutreach.org.
Thank you for your support this holiday season! You're helping us bring much needed hope to all affected families and helping to provide resources so we can continue to education medical providers at professional conferences!
Facebook Page- https://www.facebook.com/pages/Dyskeratosis-Congenita-Outreach-Inc/306708396035693