BENEFITING: CURING RETINAL BLINDNESS FOUNDATION INC
EVENT DATE: Sep 20, 2015
Let's cure us some blindness people!
My beautiful daughter, Teagan, is slowly going blind, and I can think of nothing I would like more for my birthday than to find a cure for her and restore her vision.
It is my hope to raise $100 for every year I've been alive, and every penny I raise will go to support The Curing Retinal Blindness Foundation - Our mission is to fund CRB1 research and move towards a cure as soon as possible.
Our Dining in the Dark Fundraiser is a unique culinary experience that heightens your senses! Participants eat a three course gourmet meal while blindfolded - tastes and textures change, and our chef tantalizes and tricks your palate with combinations of temperatures and flavors. You'll be amazed at the end of the meal when all is revealed!
Our Knock Blindness Out of the Park Fundraiser brings awareness of sporting activities for the visually impaired. Our participants have the opprtunity to play beep baseball with the Washington Nationals farm team the Hagerstown Suns!
These fundraisers are especially important because CRB1 research money is hard to come by. Because CRB1 is so rare, only affecting about 3300 people in the US, the disease remains low profile and treatment efforts are plagued by a lack of funding. Any support given to the hardworking foundation goes a long way. Since its inception in May 2011, the foundation has made significant progress. In that time they have recruited a Scientific Advisory Board, and held a research symposium for CRB1, the first of its kind in the US, awarded 5 research grants with their funding to teams working to find a cure in Philadelphia (where the CRBF is based), Maine, Germany, and The Netherlands.
For more information, please refer to the following site: http://crb1.org/
The people our foundation supports are blind or visually impaired due to mutations in the CRB1 gene causing a rare genetic degenerative retinal disease (Leber’s Congenital Amaurosis, Retinitis Pigmentosa, or cone-rod dystrophy). Many of the people still have some useable vision, but it will deteriorate further if nothing is done to stop the degeneration.
We at CRB1.org are working to stop that degeneration and ultimately restore all CRB1 vision and the vision of other retinal blindness's such as Diabetic Retinopathy and Age Related Macular Degeneration.
The Curing Retinal Blindness Foundation is a 100% volunteer organization that wishes to thank you for your support!