On November 6th I will be running the New York City Marathon on behalf of Global Lyme Alliance, an organization very close to my heart. Global Lyme Alliance (GLA) is a leading nonprofit organization dedicated to funding ground-breaking research and education programs for Lyme disease to the public and medical community. As I embark on my first marathon in support of GLA, I feel truly blessed to have the support of my family, all of whom have been impacted by this disease.
From a young age I have always enjoyed running, especially with my twin sister by my side, and my mom, who sparked my passion for running early in life. Unfortunately, I have also been a Lyme sufferer since I was young, and running has been an important part of my healing. In 1998, my brother, sister, mom and I were all diagnosed with late-stage Lyme disease and several of the co-infections – a real family affair. Although my parents tried to keep our lives as normal as possible, our house soon turned into a pharmacy, as antibiotics, along with an overflowing basket of ever-changing supplements, were the only methods of treatment. My mom was left searching for answers on how to care for her family (despite also having to care for herself) and knew that if this could happen to our family there were many others that were also desperately seeking answers or misdiagnosed. She, along with Debbie Siciliano, and Fran Herzog, became trailblazers in the fight against Lyme disease, co-founding the Greenwich Lyme disease Task Force, which eventually evolved to Time for Lyme Inc, followed by Lyme Research Alliance, and finally merging with Tick Borne Disease Alliance to become Global Lyme Alliance.
After spending my entire childhood, adolescence, and much of my college years on various treatments, my health is much better today, and I am so grateful to my incredible support network of family, friends, and doctors who have helped restore my health and given me this opportunity to run. For those suffering from the ravages of Lyme disease and its often chronic long-term ramifications, it takes a team of supporters on the road to restored health. I truly hope you will consider supporting my marathon journey in solidarity with all Lyme sufferers and also educate yourself about this disease that lives in our grassy fields throughout the country and affects all demographics of people. I have watched this disease rob the aspiration and potential of so many young people, and GLA is working hard to educate and find the medical answers, so that another generation of youth is not forced to grow up with a disease that they acquired so innocently.
The strides that GLA have made in education and research are unparalleled, and I could not be prouder and more honored to be running the NYC Marathon for the Lyme community and GLA. Every dollar raised will help GLA make a difference in education, finding an accurate diagnostic test, and ultimately affordable treatments for all. It is the hope that with this research we can create a Lyme Free World for our future generations. Thank you for reading my story. I appreciate your support more than you know!
With Sincere Gratitude,