Sheridan Thomas via Crowdrise
June 05, 2013
BENEFITING: FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS
EVENT DATE: Jun 02, 2013
I am taking part in the Gobi March 2013 250km 7 day Self-Supported Ultramarathon between June 2-8, which is organized by 4deserts.
I successfully took part in the 2011 event and would like to use this opportunity to raise money for the Foundation for Angelman Syndrome Therapeutics (FAST) in honor of our friend's 2 1/2 year old son, Phoenix, who was diagnosed with this condition late last year. All funds raised for FAST will benefit research aimed to discover and implement life changing therapeutics for individuals impacted by AS as well as an eventual cure.
Your contributions no matter how small all count and will help drag me across the biggest dunes, mountains, salt flats that the oven (Gobi) is going to throw at me and will make a difference to little Phoenix' quality of life.
Most importantly it will help to create hope, to all affected children, adults by this rare condition.
Thank you for your consideration.
For more information about Angelman Syndrome or FAST, please visit www.CureAngelman.org