BENEFITING: GOLF FIGHTS CANCER
ORGANIZER: GOLF FIGHTS CANCER
EVENT: 2016 Boston Marathon
EVENT DATE: Apr 18, 2016
On May 11th 2010, our dear friends learned that their 10 year old daughter had an inoperable, pediatric brain tumor called, DIPG, that had no cure and no real treatment options. This catastrophic illness took the life of Ellie Kavalieros at the age of 11 on Christmas Day and forever changed the lives of all that knew her. During her 19 month illness Ellie fought with more bravery and courage than someone twice her age would have been capable of. When she lost the ability to ride a bike, she completed a triathlon with a specialized cycle. When she lost her ability to run and play she turned to art. Through all the suffering and the pain Ellie continued to smile and in turn, made us all smile.
Despite the circumstances and adversity, Ellie’s parents, sisters and family, selflessly shared her remaining time with friends, school and our community as a whole. They opened their arms and hearts and gave us memories that we will all cherish forever. The Kavalieros family had all of the love, support, prayers and well wishes they could ask for during the battle of their lives, but what they did not have was hope. I have watched this amazing family take their anguish, pain and grief and funnel these emotions towards increasing research, awareness and hope so that future children diagnosed with DIPG and other cancers will have better treatment options.
Thanks to Golf Fights Cancer and the tireless work of Dr. Marc Kieran of Boston's Dana Farber Cancer Institute we are making large strides in beating this illness. On April 18th I will try and keep Ellie’s Legacy strong by running in her name. “Running” may be a bit of an exaggeration but I will do my best to make her proud and cross the finish line! Please help support me by helping me hit my goal of $7,500. All contributions will go directly to the Ellie Kavalieros DIPG Research Fund. And if my kids ask after the race…. please tell them I came in 1st place.