Our brother-sister team is so excited to participate in this year’s Million Dollar Bike Ride and we are grateful for anything you can donate to our cause!
A message from Ben:
Every day of my life, since shortly after birth, my blood sugar has always had to be monitored because of congenital hyperinsulinism (HI). As a baby my body made far too much insulin and the only treatment at the time was removing my pancreas. I was so lucky to get great care and have this operation to remove my pancreas at the Children’s Hospital of Philadelphia. This care and the surgery saved my brain and allowed me to live a healthy, wonderful life. However as a result of having my pancreas removed, I now have diabetes and take insulin through a pump. Since I was first diagnosed and treated as a baby, there have been improvements in care because of more knowledge and technology, but there needs to be more research so babies born with HI don’t develop diabetes when they get older. As a college student, I have benefitted from education research. Thanks to breakthroughs in understanding how people learn differently, I have been able to go to college and receive a higher education. Thanks to research, I am a successful student.
A message from Hannah:
Thanks to research, I have my intelligent, driven, and silly brother in my life! This weekend, we will ride to raise funds so that one day, babies will not have to trade one disease for another, HI for diabetes, and so that all born with the condition can lead a life without disabilities caused by prolonged hypoglycemia. Thanks to all for your incredible support on this!
Here’s more information from CHI about our cause and the ride:
Congenital Hyperinsulinism (HI) is a disease causing dangerously low blood sugar levels (hypoglycemia) due to the overproduction of insulin. Every year HI babies suffer permanent brain damage or death due to the effects of low blood sugars. HI’s consequences are preventable; tragically, HI is often overlooked, misdiagnosed, or even when detected, mistreated. Families with HI babies need on-going support as treatment is complicated, constant, and prolonged – many patients will battle hypoglycemia their entire lives.
Congenital Hyperinsulinism International (CHI) is the leading 501 c(3) nonprofit dedicated to improving the lives of people living with HI all over the world. CHI supports research for better treatments and a cure, raises awareness of HI and advocates for early HI detection and improved care, and supports those with HI and their families.
This year, our CrowdRise research theme is #StopTheLows! The funds you raise will be added to the funds raised through the Million Dollar Bike Ride at the University of Pennsylvania which will take place May 20, 2017 in Philadelphia. The University will MATCH EVERY DOLLAR WE RAISE - through both our CrowdRise AND the actual bike ride up to the first $50,000 for a total of $100,000! Donate by May 30 to get the match!