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Stephanie Stilling's Fundraiser:

Haddie Stilling Cure JM Fundraiser - Austin, TX National Conference

Stephanie's Photo
Stephanie's Photo
Stephanie's Photo
Stephanie's Photo
Stephanie Stilling

THE STORY:

Dear Friends and Family,

Our family is part of the organizing committee for the Inaugural Walk Strong to Cure JM Fundraiser, raising contributions for the Cure JM Foundation.  Cure JM funds research for Juvenile Myositis, the rare auto-immune disease which causes progressive muscle weakness that our daughter, Haddie, has been bravely battling since she was just four years old. 

We are beyond happy to share that Haddie is currently in remission.  However, it breaks our hearts that she has to live with a condition that can choose to flare and rear its ugly head again at ANY time.  The symptoms Haddie has experienced with JM have included a distinctive rash, severe muscle weakness, inability to walk on her own, dysphonia (due to weakening of vocal cords) and extreme fatigue.  We wish we could take this burden on for her, but since we can't, all we can do is vow to make a difference for her and never stop fighting for a cure for JM.

Juvenile Myositis (JM) causes the body's own immune system to attack healthy cells and tissues, which can cause pain, muscle weakness, inability to walk, disfigurement, and even death. JM can affect virtually any system of the body, the heart, lungs, skin, muscles, and more.

And believe us, our family realizes how lucky we are.  Through helping to organize and support CureJM over the years, we have met families who have been ripped apart by this disease, the financial and emotional stress, the long-term care that many children require, and the heartache that goes with watching your child suffer.  We have unfortunately also met parents who have lost their child to this terrible disease. 

And there is no cure…YET. But you can help. 

How to Help:

Please click here to make a donation and help us fund critical research for better treatments and a cure for Haddie.  Our family’s goal is to raise $7,500 for research this year. 

To make your contribution in honor of Haddie Stilling, please click here: https://www.crowdrise.com/haddie-stilling-cure-jm-fundraiser-austin-tx-national-conference/fundraiser/stephaniestilling

With endless gratitude and friendship,

Stephanie and Brad Stilling

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More Information about Cure JM:

Cure JM is a 501(c)(3) nonprofit organization. Cure JM is the only foundation dedicated solely to supporting JM research and JM families and is the leading charitable funder of Juvenile Myositis research.

Since its inception, Cure JM has invested more money into Juvenile Myositis research and programs than any other charitable organization and 91% of your contribution goes directly to research and educational programs.  Together we are helping to advance JM research at an unprecedented pace -- recently foundation-funded research uncovered the genetic causes of JM, which will lead to better treatments and, we believe, an eventual cure.  Thank you for your support and for making a difference for Haddie.

 

 

DONATE

To This Fundraiser

$6,165

MONEY RAISED
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  • Josh & Kate Kaplan

     

  • Sue Gurney

    $50

  • Reyes family

    $50

  • Danielle Faust

    $25

  • Andrea and David Field

     

  • The Hill Family

     

  • Matt Massucci

    $50

  • Jett, Shealah, and your biggest fan Tatum

    $50

  • DEE & MIKE

    $100

  • Micky & Debbi Wright

    $100

  • Robyn Steigerwald

    $50

  • Shane & Tami Speten

    $50

  • The D'Alessio Family

     

  • Jennie Geelan

    $50

  • The Pappalardo Family

    $20

  • Hanson Family

    $100

  • The Almond Family

     

  • Nagle Family

     

  • Kendra Panek

    $50

  • Anonymous

    $25

  • Ormsby Family

    $50

  • Mirna Garcia

    $25

  • Jill Kristle

    $225

  • Stephanie Reiber

    $200

  • Rimas Gilvydis

    $150

  • The Mittelstaedt Family

     

  • The Sujewicz Family

     

  • Tracy Riddle

    $100

  • Stephanie & Brad Stilling

     

  • Rick & Katie Guerin

    $50

  • Becky and Craig Hipp

     

  • Melissa and Steve Peterson

    $210

  • The Rester family

     

  • Jamie Hill

     

  • Greg and Michelle Shufelt

    $120

  • Flater Family

     

  • Greg & Amy Stilling

     

  • Matt & Melissa Norris

    $190

  • Brandon and Justin Irvine

    $100

  • Kari & Andy Walker

     

  • John and Lisa Byrne

    $340

  • Mitch & Linda Myers

     

  • David Field

    $1,000

  • Celeste Tobey LuLaRoe Boutique

     

  • Michael & Aubry Field

     

  • Carrie Cheng

     

  • Perry Johnson

     

  • Kelly Reif Stationery Studio

    $100

  • Gina Caccippio Brown

     

  • BIG Designs

     

  • Norris Family

     

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82% Raised of $7,500 Goal

Fundraise for this Campaign

The Team: $6,165 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Stephanie Stilling

Amount Raised

$6,065

 

81% Raised of $7,500 Goal

Fundraiser Title

Carrie Cheng

Amount Raised

$100

Donor Comments

Norris Family

Norris Family

We love you Stilling family! 9 months ago

BIG Designs

BIG Designs

9 months ago

Gina Caccippio Brown

Gina Caccippio Brown

9 months ago

Kelly Reif Stationery Studio

Kelly Reif Stationery Studio

DONATION: $100

11 months ago

Perry Johnson

Perry Johnson

11 months ago

Carrie Cheng

Carrie Cheng

11 months ago

Michael & Aubry Field

Michael & Aubry Field

11 months ago

Celeste Tobey LuLaRoe Boutique

Celeste Tobey LuLaRoe Boutique

11 months ago

David Field

David Field

DONATION: $1,000

Hadden Stilling 11 months ago

Mitch & Linda Myers

Mitch & Linda Myers

11 months ago