BENEFITING: NATIONAL ALOPECIA AREATA FOUNDATION
EVENT DATE: Nov 05, 2012
Hair Please! is a project I created to help raise funds for those suffering from Alopecia.
I created this fund last year when I ran the 2011 NYC Marathon, but I didn't reach my goal of raising $2620. This year I am hoping to raise all, more or at least half of my goal.
Alopecia is a condition caused by an autoimmune disease that attacks the hair follicles causing them to fall out from either the scalp and/or from the body. It can start with small patches on the scalp which can lead to total hair loss (alopecia totalis) or on the body (alopecia universalis). Alopecia affects at least 2% of the population, more than 4.7 million in the U.S. alone. This disease is unpredictable and there is no cure, however there are some maintenance treatments that can be done for those with recurring patches. While Alopecia is not a life threatening disease it can impact a person's life, whether it be their career, social life or self esteem.
Almost 4 years ago I was diagnosed with this disease and as you can imagine being a woman it was tough. After tons of blood tests, it was determined that I was just another victim of this unpredictable disease once all testing resulted normal. The first year I struggled with the changes in the texture of my hair, the lack of body and fullness and the thought of ever becoming completely bald. Four years later and about one thousand cortisone injections to my scalp I am still a victim of this unknown disease. There is no cure for this disease because there is no known fact linked to the true cause of it, however there are treatments. One of those treatments are cortisone injections which are injected directly into the bald spots of the scalp. Fortunately for me these injections have worked as my hair follicles have been very receptive, however the spots tend to come back and often time new ones appear. Some doctors have theories of this disease being linked to Thyroid, Stress, Testosterone levels etc... but there is no true link to a cause.
Today research is being done to determine the cause for this disease with hopes of finding a cure or an acceptable treatment.
Raising awareness for this disease is something that I struggled with for the past year. This is something I have kept among my closest friends and family for many reasons but, I have finally found the courage to invite you all into my hidden autoimmune disease secret in hopes of building awareness and raising funds to find a cure.
This year I am running the 2012 ING NYC Marathon and would like to take this opportunity to raise money for the NAAF (National Alopecia Areata Foundation) research on finding a cure.
Please help spread the word to your friends, family, co-workers, enemies about this unpredictable disease.
My goal is $2620.