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Henry Chiuppi's Fundraiser:

Hank's virtual walk for rare disease research

Henry's Photo
 

The totals are in!
September 27, 2016

The total raised is ~32,000. Thats Awesome!  See more

BENEFITING: Spastic Paraplegia Foundation, Inc.

EVENT: Six Degrees Every Day Fundraisers

EVENT DATE: Sep 24, 2016

Henry Chiuppi

THE STORY:

Please help me raise money for funding research for rare diseases. Someone will walk for me on Sept. 24 in- Fremont, CA. I have Primary Lateral Sclerosis (PLS). PLS is a group of rare, degenerative, neurological disorders. PLS is caused primarily by degeneration of the upper motor neurons in the brain and spinal cord, which results in increasing spasticity and weakness of voluntary muscles. It is often referred to as a benign variant of Amyotrophic Lateral Sclerosis (ALS, Lou Gehrig’s disease). The primary difference between the two is that in PLS the spinal motor neurons or lower motor neurons stay intact. Thus, there is no muscle wasting (amyotrophy), which is the symptom that ultimately causes fatal complications in ALS. The disorder usually begins in the legs but can begin in the upper body or bulbar (speech and swallowing) muscles. The age of onset is generally between 35 and 66 years of age. The incidence rate for PLS is difficult to determine. One study puts it at 500 individuals in the United States. However, many researchers feel this is inaccurate, and that the actual incidence rate is closer to 2000. Thank You!

DONATE

To This Fundraiser

$1,010

MONEY RAISED
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  • Karin Beil

     

  • Richard and Genine Macaluso

     

  • Marsha Traub

     

  • Lori Kelly

     

  • Harold

     

  • Lauri Salani, P.T.

     

  • clifford pazik

     

  • Ann Maher

     

  • MKA

     

  • Deanne Howard

     

  • Nick Mitchell

     

  • Tiffany Streng

     

  • Tom and Terri Streng

     

  • Mare Dziadul

     

  • Roger and Pam Lundstrom

     

  • Donna J. Canchola

     

  • Jennifer Jacobs

     

  • Luann Canchola

     

  • Annie Maher (Chiuppi)

     

  • Chris, Mary & Corinne Christensen

     

  • Shelley young

     

  • Dale Fink

     

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101% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $1,010 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Henry Chiuppi

Amount Raised

$1,000

 

100% Raised of $1,000 Goal

Fundraiser Title

Teague Streng

Amount Raised

$10

Donor Comments

Dale Fink

Dale Fink

2 years ago

Shelley young

Shelley young

Praying for you.(mary's friend) 2 years ago

Chris, Mary & Corinne Christensen

Chris, Mary & Corinne Christensen

We ð 2 years ago

Annie Maher (Chiuppi)

Annie Maher (Chiuppi)

Know she is so proud of her little brother! 2 years ago

Luann Canchola

Luann Canchola

many blessings and prayers for you and your family! 2 years ago

Jennifer Jacobs

Jennifer Jacobs

In Honor of Hank Chiuppi! 2 years ago

Donna J. Canchola

Donna J. Canchola

Good luck on a successful campaign for more research! 2 years ago

Roger and Pam Lundstrom

Roger and Pam Lundstrom

2 years ago

Mare Dziadul

Mare Dziadul

2 years ago

Tom and Terri Streng

Tom and Terri Streng

Go Hank Go! 2 years ago