Skip to content

Happily Ever After for Kiana!

Organized by: Katayoun Soleimani

Katayoun's Photo

THE STORY:

My name is Kiana Rose. I was sent to my parents as a Christmas gift three years ago. At first, life was great and everything looked fine. But after a few months, I started to have seizures and little by little other signs came to the surface. After several blood tests, MRI, EEG and hospitalizations, the doctors came up with a very big name: Pyruvate Carboxylase Deficiency, or PC, which is a genetic mitochondrial disorder. Basically the batteries of my body do not produce enough energy, which causes damage to my brain and organs. I have very low muscle tone and can not sit or walk yet, but I am working very hard at it with the help of my therapists. Even though the prognosis is not the best, I am hoping for the best! That’s why I am a very happy baby and I know how to melt people’s hearts with my beautiful smile and mesmerizing black eyes. My mom is doing everything in her power to make my life extraordinary. She had to quit her job and stay home in order to take care of me. Mitochondrial disorder is not that rare and is claiming more children every year than cancer. However, the general public is not aware of it unless their loved ones are affected. I take about 30 doses of medications per day. In order to give me a better chance to survive Drs need to find the best medications and the right dosage. Unfortunately these tests are not covered by insurance and cost minimum $50,000. That's why l need your help to get a better chance to win this fight! I would like to thank you, in advance, for your generous contribution. With love, Kiana Rose

$1,225

 

2% Raised of $50,000 Goal

  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Tammy Ahrens

    $100

  • sara shahnavaz

    $200

  • valerie Mal-lawane

    $250

  • Majid A

    $200

  • Forouzan Sabzevar

    $50

  • Roshanak Eftekhari

    $50

  • Nadia basharkhah

    $200

  • Marjon Moheb

     

  • Samila

     

  • Masoud Khoshnevis

    $100

  •  
  •  
  •  
Organized by

Katayoun Soleimani

This is a direct to organizer fundraiser.

Donor Comments

Masoud Khoshnevis

Masoud Khoshnevis

DONATION: $100

1 year ago

Samila

Samila

1 year ago

Marjon Moheb

Marjon Moheb

Please let me know if I can help you with anything 1 year ago

Nadia basharkhah

Nadia basharkhah

DONATION: $200

Wish the best 2 years ago

Roshanak Eftekhari

Roshanak Eftekhari

DONATION: $50

2 years ago

Forouzan Sabzevar

Forouzan Sabzevar

DONATION: $50

2 years ago

Majid A

Majid A

DONATION: $200

2 years ago

valerie Mal-lawane

valerie Mal-lawane

DONATION: $250

Hi Katy We wish you and Kiana the best. Bisous 2 years ago

sara shahnavaz

sara shahnavaz

DONATION: $200

lots of love 2 years ago

Tammy Ahrens

Tammy Ahrens

DONATION: $100

2 years ago

Report this page — Let Us Know if you think this page is breaking the law or the CrowdRise Terms