Hark is on a mission to share the real story of ALS and to provide a network of compassionate resources for families.
HARK was formed in memory of my dad, Charlie "HARK" Dourney who lost his courageous battle with ALS (Lou Gehrig's Disease) in 2009. We watched helplessly as he lost his ability to speak, swallow, eat walk or do any of the things we all take for granted everyday. It was heart wrenching to watch and frustrating to see that very few people know realize how devastating it is for patients and theri families. We that needed to change!
The first step in “Changing the way the world views ALS” is to ensure that the world knows what the disease is and how devastating it is to families that are affected by it. As we navigated our way through ALS we realized the severe lack of awareness that existed about this disease outside of the ALS community.
Hope on the Horizon is not just about ALS, it’s about facing life’s challenges with courage and overcoming seemingly insurmountable odds every day. The documentary will bring viewers a firsthand view of two sets of challenges simultaneously.
The challenges of negotiating the fragile beauty and rugged terrain of the White Mountains will serve as an engaging storyline used to teach the world about the true challenges and hardships faced by ALS victims and their loved ones in dealing with this devastating disease.
Through this film HARK will change the way the world views ALS, increase awareness of this fatal disease and raise funding to provide resources to ALS patients and their families that need assistance in facing a challenge far greater then the White Mountains.
Visit our website at www.hark-als.org to learn more about Hope on the Horizon.