BENEFITING: INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION
EVENT DATE: Oct 01, 2015
After years of no head pain diagnosis because I didn't fit all the criteria, I was finally diagnosed with Intracranial Hypertension (IH) in 2012. In addition to the non-stop head pain I have had since before my official diagnosis, I have vision issues like many other with IH. In fact, IH can lead to blindness in some. We go through meds and surgeries to try to relieve the cerebrospinal fluid pressure in our heads. For some, the options work, for many they don't. We float between meds and doctors, hoping someone has had success with some combination that will work for us...just so we have a little bit a relief. There is no cure for IH and little research money other than what is donated to look for better ways to treat and cure IH.
I had my first discussion with a doctor about IH in 2006 but had no full testing until 2012. That's 6 years of treating head pain that never really responded to meds unless I was in the hospital but I never fit full criteria. And even if I did, IH is rare so most of of the doctor's I have come across didn't know what it is.
On September 30th, it will be 1,131 days since this head pain started. That's over 3 years straight of head pain. Every day. Sure some days I feel a little less like banging my head against the wall, but every single day for over 3 years.
I'm asking for you to have my back this September which is IH Awareness Month! Donate for the time I went undiagnosed, the time daignosed...for me and for everyone else with IH! Light the way to awareness both for the public and the medical community!
Donating $10 = $6- 6 years I went undiagnosed + $3- 3 years I have been diagnosed + $1-for luck & a treatment that works this next year!