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Frances Marin's Fundraiser:

Huntington's Disease Society of America TCS New York City Marathon 2016

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owner profile imageFollow Up to Previous Post - HDSA Awareness Event on Saturday, September 3rd, Fleet Feet Menlo Park!
August 09, 2016

I neglected to include a date on my previous email! The event will be held on Saturday, September 3rd. Thanks for bringing this to my attention  See more
Frances Marin

THE STORY:

My first interaction with Huntington's Disease was more than ten years ago when I met my husband, Keith, in a memoir writing class in college. My husband shared a story about his three aunts; Lora, Marcia, and Cindy and their struggle with the deadly disease. Keith also mentioned his father potentially carried the HD gene, but was unsure because he had never been tested. Little did I know at the time that Keith’s story would become my reality.

My second interaction with Huntington’s Disease was when I met Keith’s Aunt Cindy for the first time. She was in a care home, reclining in a La-Z-Boy chair, staring up at the ceiling. Keith gave her a kiss on the forehead and introduced me, but she was non-responsive. The disease had taken over her nervous system. It was only a matter of time until the disease claimed her life. Seeing Cindy was devastating and heartbreaking. She was frail and only a thin layer of skin and blankets covered the bones protruding from her body. I had heard stories of Cindy’s adventures; traveling to Africa, participating in protests at Cal-Berkeley, living in Canada, and taking Keith and his sister, Vanessa, on quests in their own backyard. It wasn’t fair.

I never had the pleasure of meeting Lora and Marcia. I knew the Marin women were special just from my brief interaction with Cindy and the times Keith’s Dad, John, would share their stories. For the past ten years, I have kept their stories tucked away in my heart along with the hope that Keith and I would never have to endure this deadly disease. Keith and I were married last August and had decided that Keith would be tested for the gene so we could choose whether or not to have children. John decided our fate when he opted to get tested in December of 2015. John tested NEGATIVE.

Vanessa, Keith’s sister, and I will be running in the NYC Marathon for the Huntington’s Disease Society of America team. I cannot wait to cross the finish line with her in honor of Lora, Marcia, and Cindy. I dedicate this race to their legacy, my husband, father and mother-in-law, and all of the people who have been affected by this disease.  

The Huntington's Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families.

HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education and outreach to HD families and health care professionals across the United States.

All funds raised will help support HDSA's Mission of helping those affected by HD and their families.

$4,350

MONEY RAISED
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  • Cindy (Epps) Sturgeon and family

    $25

  • Lobat

     

  • Jeanne & Bob Wenger

     

  • The Sullivans

    $75

  • Lenli Corbett

    $75

  • Grady

    $100

  • Katie and Chris Carrier

    $50

  • Susan Kelsey

     

  • Chris Johnson

    $25

  • Jessica & Dan Levine

    $25

  • Kristin Wall

    $10

  • Mallory Davis

     

  • Frances Rice

    $100

  • Tori Forman

    $100

  • Pat & Margo Nieves-Chapman

     

  • Lynda Borelli & Lacey Chalenor

    $50

  • sally sorenson

    $25

  • Sandy Lim

     

  • Ellen Wells

    $10

  • Ian Ballantyne

    $25

  • The Rice Family

    $50

  • Maggie, Kris and Coop

    $100

  • The Zimmermanns

    $50

  • Ken Stevens

    $35

  • Mahlow Family

    $200

  • Evan Bricker

    $10

  • Anonymous

    $100

  • Oliver Bray

    $100

  • Jena and Jared

    $25

  • Veronica and Rob Valli

    $50

  • Kyle and Erica

    $50

  • Matt and Jennifer Tucker

    $25

  • Jordan & Christine Friedman

    $50

  • James Crutcher

    $200

  • Jang-Ho Cha

    $10

  • Breslin Family (and Frank)

     

  • Anonymous

    $10

  • Keith Juricich

    $50

  • Britt

    $10

  • Travis + Andrea Jew

    $25

  • Anonymous

    $100

  • Janelle Croshaw

    $100

  • Anonymous

    $100

  • Bruce Watson

    $50

  • Thomas Sorenson

    $50

  • Frances Rice

    $50

  • Ed & Linda Whitehead

    $100

  • John & Cynthia Bow

    $25

  • Billy & Sarah Wheeler

     

  • Matt M.

    $50

  • Lisa Wolf

    $100

  • Christina Patton

    $50

  • William Eleazer

    $50

  • Vivian Drew

    $100

  • Susan Kelsey

     

  • The Nino's

    $100

  • Morgan Edwards

    $25

  • Vanessa and Scott

    $25

  • Becca Carpenter

     

  • William & Dana Sullivan

    $75

  • Anonymous

    $155

  • Susan and John Hogg

     

  • Franklin Templeton Investments Match/Lobat Omidvari

    $25

  • Peckham

     

  • Linda O'Brien

    $50

  • Carole Clausen

    $50

  • Impact! Kickboxing Fitness

     

  • Fleet Sports

    $500

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124% Raised of$3,500 Goal

The Team: $112,269 TOTAL RAISED SO FAR

Fundraiser Title

Jang-Ho Cha

Amount Raised

$13,813

 

138% Raised of$10,000 Goal

Fundraiser Title

Rhonda Hennahane

Amount Raised

$7,185

 

72% Raised of$10,000 Goal

Fundraiser Title

Greg Cassity

Amount Raised

$6,248

 

125% Raised of$5,000 Goal

Fundraiser Title

Seth Rotberg

Amount Raised

$5,905

 

118% Raised of$5,000 Goal

Fundraiser Title

Tonia Carpenter

Amount Raised

$5,865

 

117% Raised of$5,000 Goal

Fundraiser Title

Adam Liebhoff

Amount Raised

$5,524

 

110% Raised of$5,000 Goal

Fundraiser Title

Meghan Small

Amount Raised

$4,660

 

133% Raised of$3,500 Goal

Fundraiser Title

Kristen Westdorp

Amount Raised

$4,660

 

93% Raised of$5,000 Goal

Donor Comments

Fleet Sports

Fleet Sports

DONATION: $500

2 years ago

Impact! Kickboxing Fitness

Impact! Kickboxing Fitness

2 years ago

Carole Clausen

Carole Clausen

DONATION: $50

Lora, Marcia and Cindy 2 years ago

Linda O'Brien

Linda O'Brien

DONATION: $50

In honor of Cindy, Lora, & Marcia 2 years ago

Peckham

Peckham

Your amazing 2 years ago

Franklin Templeton Investments Match/Lobat Omidvari

Franklin Templeton Investments Match/Lobat Omidvari

DONATION: $25

2 years ago

Susan and John Hogg

Susan and John Hogg

2 years ago

William & Dana Sullivan

William & Dana Sullivan

DONATION: $75

2 years ago

Anonymous

Anonymous

DONATION: $155

2 years ago

Becca Carpenter

Becca Carpenter

You go girl! 2 years ago