BENEFITING: Huntington's Disease Society of America, Inc.
EVENT DATE: Nov 06, 2016
Dear Family, Friends & Colleagues: On November 6th, 2016 my brother, Adam, and I will be running the NYC Marathon to raise money for the Huntington's Disease Society of America (HDSA). Adam's wife Emilie's family has been devastated by Huntington's Disease. Without getting too deeply into the details, Adam's mother-in-law grew up as one of five sisters. Just last year she lost the third of her sisters to HD and long before that, her father fell victim to the disease. Fortunately, the chain has been broken, as neither her nor her surviving sister are carriers of the disease. Thus, there is no one else in our family who is at risk. Nonetheless, although I haven't suffered directly in watching my loved ones deteriorate before my eyes, the impact of such an experience is palpable throughout Emilie's family. And that's my motivation. I'm volunteering to suffer (again, not a runner) through a 26 mile race so that hopefully those diagnosed with HD will suffer less in the future. A bit on the actual organization: the Huntington's Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families. HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education and outreach to HD families and health care professionals across the United States. All funds raised will help support HDSA's Mission of helping those affected by HD and their families. By registering for the NYC Marathon on the HDSA team, I have committed to raising a minimum of $5,000 for the HDSA, and I need your help to surpass that goal! I ask you to support this wonderful cause by making a tax deductible contribution that feels comfortable to you by following the link immediately below to my Crowdrise page and please remember that