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Neurodevelopmental Disabilities Lab's Fundraiser:

Heartland Fragile X Alliance Let 'em Know 2014

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Neurodevelopmental Disabilities Lab

THE STORY:

Nancy Carlson wrote -

We are excited to support the National Fragile X Foundation’s “Let ‘Em Know 5K” event with the creation of our own fundraising team! We hope you will join us to raise awareness and money for Fragile X!

 Ways you can get involved:
 1. Join our team! Click the “Join our team” option and help us reach our fundraising goal!

 2. Create a team as part of our Heartland Fragile X Alliance !! Help us reach more people and raise more awareness by being a part of our team! We’d love to see a team created in the honor of someone you love with Fragile X as part of our efforts!

 3. Donate! We can’t meet our goals without your donations! $5, $15, $25, $100 – any amount, it all makes a huge difference and puts us closer to meeting our fundraising goal!

 4. Register to participate in the virtual event! For your $25 registration fee (by June 11) you will receive your official Let ‘Em Know Dri-fit race shirt and race bib! (Please note, registration is separate from the donation.)

 5. Spread the word!! Share our post with your family and friends through email, Facebook, Twitter and other social media outlets!

 What is Fragile X?
 Fragile X is a family of fragile x associated disorders:

 Fragile X syndrome (FXS) — The most common cause of inherited intellectual disability and the most common known genetic cause of autism. Individuals with FXS can experience developmental delays ranging from mild to severe.

 Fragile X-associated tremor/ataxia syndrome (FXTAS) — An adult onset (over 50) neurological disorder causing tremors and changes to balance, memory, mood and intellect.

 Fragile X-associated primary ovarian insufficiency (FXPOI) — A condition that causes irregular menstrual cycles, infertility and premature menopause in females of reproductive age.

 Fragile X-associated Disorders can be passed on by carriers of the FMR1 gene mutation who have no apparent signs of an FXD. In some families a number of individuals may be affected, while in other families a diagnosed individual may be the only known family member to exhibit symptoms. Also, in some families, only carriers are identified and there are no apparently affected family members.
 What is a Virtual 5K?
 Basically, it means you can complete it anywhere, anytime beginning July 1 and ending on July 31, 2014. You can run or walk the 3.1 miles (5K) all at once, over the course of a week or the entire month. This is on the honor system—you do not have to report or verify your miles!


 Where can you learn more?
 From the National Fragile X Foundation’s Website! www.fragilex.org


 We hope you will join us and support our team!

 

$120

MONEY RAISED
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  • Christie

    $10

  • Jamie

    $10

  • Christine

    $10

  • Molly/NDL

    $50

  • Brynn Thomas

    $10

  • Chelsea

    $10

  • Anne O'Rourke Taylor

    $10

  • Abby

    $10

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Fundraise for this Campaign

The Team: $490 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Nancy Carlson

Amount Raised

$320

 

13% Raised of $2,500 Goal

Fundraiser Title

Brenda Slama

Amount Raised

$50

 

5% Raised of $1,000 Goal

Fundraiser Title

Fake Name

Amount Raised

$0

Fundraiser Title

Peter Benton

Amount Raised

$0

Donor Comments

Abby

Abby

DONATION: $10

3 years ago

Anne O'Rourke Taylor

Anne O'Rourke Taylor

DONATION: $10

3 years ago

Chelsea

Chelsea

DONATION: $10

3 years ago

Brynn Thomas

Brynn Thomas

DONATION: $10

3 years ago

Molly/NDL

Molly/NDL

DONATION: $50

3 years ago

Christine

Christine

DONATION: $10

3 years ago

Jamie

Jamie

DONATION: $10

In honor of the members of the NDL! 3 years ago

Christie

Christie

DONATION: $10

Happy to contribute to FXS research! 3 years ago