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Semone Fearon's Fundraiser:

Heart of Grace

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Semone Fearon

THE STORY:

Heart of Grace is a foundation created to honor our little angel, Soraya Grace, who graced us with her presence before she gained her wings and flew away from this earth two days after birth.
Heart of Grace aims to created awareness about Hypoplastic left Heart Syndrome, a rare and sometimes fatal congenital heart defect.

Hypoplastic left heart syndrome (HLHS) is a birth defect that affects normal blood flow through the heart. As the baby develops during pregnancy, the left side of the heart does not form correctly. Hypoplastic left heart syndrome is one type of congenital heart defect. Congenital means present at birth.

Hypoplastic left heart syndrome affects a number of structures on the left side of the heart that do not fully develop, for example:

The left ventricle is underdeveloped and too small.
The mitral valves is not formed or is very small.
The aortic valve is not formed or is very small.
The ascending portion of the aorta is underdeveloped or is too small.
Often, babies with hypoplastic left heart syndrome also have an atrial septal defect, which is a hole between the left and right upper chambers (atria) of the heart.
In a baby without a congenital heart defect, the right side of the heart pumps oxygen-poor blood from the heart to the lungs. The left side of the heart pumps oxygen-rich blood to the rest of the body. When a baby is growing in a mother’s womb during pregnancy, there are two small openings between the left and right sides of the heart: the patent ductus arteriosus and the patent foramen ovale. Normally, these openings will close a few days after birth.

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