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Heather & Chris Kunorillo's Fundraiser:

Riding for Liv and Everyone with Nemaline Myopathy!

Heather & Chris' Photo

BENEFITING: A FOUNDATION BUILDING STRENGTH INC

EVENT: LoveLiv Cycle

EVENT DATE: Mar 13, 2016

Heather & Chris Kunorillo

THE STORY:

For its fourth annual fundraiser benefitting A Foundation Building Strength (AFBS), LoveLiv will once again have a Soul Cycle ride! AFBS remains the only non-profit worldwide dedicated to finding treatment for Nemaline Myopathy, a rare muscle disease that Liv has. People with NM, including Liv, generally cannot eat, breathe and walk on their own. Life expectancy is greatly reduced due to respiratory complications. Although Liv has made great strides, she just turned 4 years old and still cannot walk or crawl, and relies on a feeding tube for some of her nutrition.  Like so many with NM, her speech is affected by severe muscle weakness in her mouth.  

With your help, we can find treatment to better Liv's life and those with NM.  AFBS is seeking to fund a gene therapy study for Nebulin based Nemaline Myopathy, targeting the same mutation Liv has.  If this study is successful, Liv could have treatment in a few years.  This is one of the most exciting proposals we have received and we need your help!   

DONATE

To This Fundraiser

$775

MONEY RAISED
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  • Krissy

     

  • Maggie M

    $50

  • Stacey & Jason Astor

    $25

  • Chantal

    $100

  • Sandy Choi

    $50

  • Rachel Robinson

    $25

  • George Hemingway

    $25

  • Mahshid Feiz

    $25

  • Kelly List

    $50

  • Sunny Ahn Whang

    $50

  • Carol and Neil Goldberg

     

  • Canard and Jennifer Barnes

    $100

  • The Vignovic Family - David, Amy, Rade Milo & Lilianna

    $100

  • Heather & Chris Kunorillo

    $100

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78% Raised of$1,000 Goal

The Team: $775 TOTAL RAISED SO FAR

Donor Comments

Heather & Chris Kunorillo

Heather & Chris Kunorillo

DONATION: $100

3 years ago

The Vignovic Family - David, Amy, Rade Milo & Lilianna

The Vignovic Family - David, Amy, Rade Milo & Lilianna

DONATION: $100

3 years ago

Canard and Jennifer Barnes

Canard and Jennifer Barnes

DONATION: $100

3 years ago

Carol and Neil Goldberg

Carol and Neil Goldberg

3 years ago

Sunny Ahn Whang

Sunny Ahn Whang

DONATION: $50

3 years ago

Kelly List

Kelly List

DONATION: $50

3 years ago

Mahshid Feiz

Mahshid Feiz

DONATION: $25

3 years ago

George Hemingway

George Hemingway

DONATION: $25

3 years ago

Rachel Robinson

Rachel Robinson

DONATION: $25

3 years ago

Sandy Choi

Sandy Choi

DONATION: $50

3 years ago