Helmet for wiley
Organized by: Brooke Burns
My son Wiley Nock was born with congenital torticollis, which means he was born with the neck condition, usually because of position they were stuck in a little too long in uteroIf torticollis isn’t addressed early on (as early as 2 months old), patients tend to get (plagiocephaly) a flat spot on the side of their head that they’re always turning to. If the flatness continues to progress, it can affect a child’s facial symmetry. 1: larger forehead on 1 side 2: 1 ear pushed forward 3: Eye and cheek on flat side tends to look larger Wiley is now 5 months old, and his physician recommend a helmet to help improve the child’s head shape. A helmet will only help the head shape, but if it isn't addressed then you could see some affects. :Vision can be affected because he may not be fully able to track objects with their head only turned to one side. As a result they can have delayed tracking, which can delay their interaction with objects in their environment. :Fine motor skills and hand use can be affected as babies tend to use the hand they see more when their head is turned. This can delay fine motor skills as they will not be using both hands equally. :Gross motor skills can be delayed. These include progressing tummy time, as 1 side of the neck will be weak as a result of a baby always looking in 1 direction. This can lead to a delay in the milestones following tummy time such as rolling and crawling. :Balance can be affected since our balance centers depend on holding our head in the middle, and if a child is always tilted, the body will begin to think that the tilted position is the correct position. A delay in developing age-appropriate balance can also lead to a delay in gross motor milestones. But we have an amazing PT nurse come out since June every tuesday she is working on stretching his muscles and as well strengthening his neck muscles. He is improving weekly even though he is improving his skull isn't changing we went to Dr. Hanger of tyler tx to see what we needed to do about receiving his helmet and he said that our insurance covered everything EXCEPT purchasing the helmet we were shocked because we have done so much to get this far an to be told that was heartbreaking I asked how much was the helmet it's self an he told me it $3,800 an me an my husband were in shock i wanted to cry an pray for help an guidance because we don't have that kind of money we have tried everything no bank or loan officer will give us the money they reason why is I'm a stay at home mom no income and my husband doesn't have good credit due to when he was in his early 20's this is our last hope to get the medical help for my son. So please help my son Wiley Nock get the help to improve his skull. Thank you an GOD bless you all.