Help Adam Fight EDS
Organized by: Tony Inzauro
April 24, 2016
EVENT DATE May 01, 2016
Adam Inzauro is 15 years old and a freshman at Papillion-Lavista High School who is an adventurous, fun-loving, carefree young man. He is known for having a huge heart and helping others in any way he can. In August last year Adam was diagnosed with the classic type of Ehlers-Danlos Syndrome.
Ehlers-Danlos Syndrome (EDS) is relatively rare and classified as an inherited connective tissue disorder that is caused by a defect in collagen production. (The connective tissue is what provides the framework and support structure for body tissues and organs; and the collagen is a protein, which acts as a “glue” in the body, adding strength and elasticity to the connective tissue.)The collagen with which a person with EDS is built is not structured the way it should be, or only part of it is produced. This can cause a range of problems as mild as a dislocated joint to a life-threatening condition.
In February 2016, Adam was hospitalized after having a sudden onset of severe abdominal pain after eating which led to many tests that found the main artery that supplies blood to his stomach and intestines was completely blocked. Adam required surgery to bypass the blocked artery so he could eat again. Because EDS and Adam’s condition for his age was rare it took some time to find the right hospital and surgeon to perform the procedure. Adam had surgery February 15th at Children’s Hospital in Omaha and remained in the hospital for another 3 weeks while recovering.
Unfortunately Adam’s struggle did not end there and through this process has lost a significant amount of weight. He is unable to eat or take in any nutrition without having problems with digesting and absorbing the nutrients. So he requires supplemental nutrition through a tube in his nose. The specialists continue to run tests to find the cause of his bowel problems but have not yet been able to find a reason.
In the meantime, Adam is unable to go to school and requires round the clock cares. His parents have been taking turns providing care for Adam at home. This has caused a significant financial burden on Adam’s parents due to accumulating medical bills and taking time off of work without pay. His family continues to face the uncertainty of his current condition as well as their ability to care for him around the clock.
Since there is not a cure for EDS at this time Adam will require medical care for the rest of his life. Please consider donating to Adam’s benefit so he can get the much needed medical care he will require for the rest of his life.
Adam and his family would like to thank everyone in advance who makes a donation and who has supported them in Adam's fight against EDS. Every dollar counts and helps them continue to make a joint effort to focus on caring for Adam.