Help for Summer #alwayslovestrong
Organized by: Lacey Sparks
Summer was diagnosed with ALS recently this month. ALS is a motor neuron disease with a life expectancy of 2-5 years. The disease causes the nerves to lose communication with muscles. The end result is being completely paralyzed but never losing your mind, sight, or sensory. Summer is beginning to need help around the house and with her mobility. Simple tasks like buttoning her blouse, tying shoes, fixing her daughters' hair have all proven to be difficult the more her disease becomes advanced. Her over all focus is to do everything she can for her two girls Lexi and Ady. Lexi is 8 years old and is in the second grade. Ady is 5 and attends preschool. Summer is employed with Trustmark National Bank. They are allowing her to work from home a few hours a day. She will soon take medical leave to transition to full disability. She wants to stay active for them and be able to spend as much time as possible with them as she can. Her mobility being a main issue, has meant a motorized wheel chair was necessary. This has been a blessing but her home is not handicap accessible. Ramps will need to be made, handicap showers installed, doorways widened, and a specialized van will be just a few necessities she will need in just the next few months. ALS can attack the body rapidly. These are things that need to be addressed now, since we have been given the definite diagnosis. Summer is as independent as they come. She has never been one to ask for help. Instead she has been the caregiver for many. She, like so many other independent people, is finding it so hard to deal with the long line of friends, family, & even strangers that want to help meet her and her family's needs. If you can't give to her cause, please share her story. Share her link on your Facebook or social media accounts. There has got to be an outcry to find a cure for ALS. Above all else please pray for Summer and her family. Keep her family in your thoughts and prayers as she stands against this disease. She will not be standing alone though. We are all choosing to #alwayslovestrong.