June 25, 2017
EVENT DATE: Jun 25, 2017
As many of you know, Lila was diagnosed with Type 1 Diabetes at the age of 10. After presenting her diagnosis to Ms. Brown's 4th grade class alongside the school nurse, she bravely went on with her tween business. T1D is not an easy diagnosis and she is our HERO, having a positive attitude and refusing to let a mere chronic disease slow her down.
Since being diagnosed Chris and I have raised funds towards a cure. Chris's goals was to raise funds by participating in the Boston Marathon; mine has been by participating in the Cohasset Triathlon each year. Together, we have raised nearly $30,000. So many of you have generously supported our efforts and we are grateful. JDRF is our charity of choice, the leading global organization funding T1D research -- $2 billion thus far. There are new therapies and cure-focused research that are getting closer then ever to implementation. This is why we continue our efforts and hope you may consider JDRF among your charities of choice.
This fundraiser is attached to my participation in the Cohasset Triathlon on June 25, 2017. I'm still trying to rope Chris in for the frigid ocean swim!
T1D is not caused by diet, nor is there a cure. T1D is an auto-immune disease in which the pancreas stops functioning and insulin must be injected with every bite of food. It is a careful dance with growing active bodies. The biggest health concerns are life-threatening drops in blood sugar, which can cause seizures (luckily we have avoided this) or a pattern of high blood sugars that can have negative impacts on vision, circulation, and more. Lila lives these realities every day and her awareness of her mortality is far more than it should be for a 12 year old girl.
We are grateful to educate you on Lila's condition so more trusted eyes are on the lookout for her. If she ever appears disoriented she may have low blood sugar remedied by candy or a juice box. She always has these with her, along her blood glucose meter, and glucagon (epi-pen style injection if her blood sugar was so low that she lost consciousness). We also want you to know the signs, god forbid, any of your loved ones shows symptoms of the disease.
Click here to watch a video to learn more about the signs of T1D.
While this is a challenging diagnosis, we are optimistic and do our best to keep Lila open to life experiences, to testing her bounds, and not limiting her aspirations. She is a driven, bright, loving young girl who in addition to other things, wants to be just like everyone else.
Meredith, Chris, Lila (12), and Alex (10) Jylkka