Help Launch the Endometriosis Action Alliance
Organized by: Jaimee Rudman
As two women who have had their lives turned upside down by a prevalent, invisible disease that nobody is talking about, we have decided that enough is enough. It is time to break the silence.
1 in 10
We all have a 1 in 10. Given that most of us know more than 10 women, we all have several 1 in 10s. Jaimee Rudman and Cassie Forrington are among them. And we have decided to do something about it.
Do something about what, exactly? About one of the biggest health threats to women. About a disease that is so misunderstood that the average diagnosis time is 7-10 years. About a disease that results in chronic pain, infertility, depression, loss of productivity, and so, so much more. About a disease that affects women in the best years of their life, stripping them of their full potential and rights to a happy and healthy life.
This disease is called endometriosis. You might have heard of it. If you're like most people, you don't know exactly what it is, beyond the fact that it can cause "killer cramps". We're here to tell you that it is so much more than that.
For a disease that affects 176 million women worldwide (yep, 10% of women during their reproductive years), very little is known about it. Archaic treatment methods are still being used. Very little funding is dedicated to research. Women are being told to get pregnant or have hysterectomies to treat the disease, neither of which is a reliable treatment, let alone a cure. Can you imagine being told that pregnancy is a treatment for your disease? Or that having your reproductive organs removed is the answer, only to be left in pain after your medical castration?
Time for a Change
As two women who have had their lives drastically affected by endometriosis, we are standing up and saying enough is enough. Women with endometriosis suffer at the hand of a deeply entrenched social pathology perpetuating the stereotype of the “hysterical female”, gender bias in the medical field and social stigmas that prevent women from getting timely and accurate medical care for this disease that causes significant physical, mental and social damage.
We aim to give a strong, united voice to empower women, the people who support them and their medical providers. By banding together we can encourage the structural and social changes needed to decrease diagnosis times, improve treatment outcomes and reduce the gender inequities that those with this disease face. This is not a disease of painful periods. This is a life-altering disease without a cure, and without reliable treatment plans.
What We're Doing
We are a grassroots movement: A revolution to bring social justice to those affected by endometriosis. We're talking to women with the disease, their partners, their loved ones, their employers, their health care providers, our society. We are empowering everyone to do the same. This is not a woman's problem, this is a societal problem. And it's time for a change.
We have the foundation built. We have formed great relationships with the key players in the movement to change the reality for women with endometriosis. We have a mission, a plan, and goals. Now, we need to set up our legal infrastructure.
The point of this campaign is to raise the funds to allow us to form an official non-profit organization. There are lots of things to file, and they all cost moolah. Once we have that in place, we can apply for grants, raise more funds, and plan more initiatives.
For us, for your 1 in 10, for women and girls worldwide: won't you help break the silence?
Together, we WILL change the world. Please join us.
To learn more about us and our movement, please visit the Endometriosis Action Alliance website.