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Help Anton get to the Patient Care Conference for EB

Organized by: vanessa delgado

vanessa's Photo
 

vanessa delgado via Crowdrise
June 25, 2014

Thank you so much to everyone who shared and gave. We met our goal in just 3 short hours! Praising God!!! See More

EVENT DATE Jul 23, 2014

THE STORY:

Anton suffers from a very rare genetic connective tissue disorder called Epidermolysis Bullosa, or EB for short. Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder that causes painful blistering of the skin and the mucous membranes.

Those affected lack the proteins that prevent the skin layers from acting independently from one another resulting in extreme fragility of the skin. This means that the slightest of touches, even a hug can cause excruciatingly painful blisters and wounds. These wounds are very susceptible to infections which can often times be lethal.

In order to protect the skin from infections and additional wounds, one must be wrapped in special bandages that do not adhere to the skin. These bandages must be changed frequently…a tedious and painful process. However since there is no cure, this is the only effective treatment.

As Anton gets older he is realizing that he is different than his Mom, Dad, Sister and Brother. He is asking more and more questions and wondering why his skin can't be like his family's skin.

His family is doing the best they can to answer his questions about his special skin but they have realized one of the best things for Anton right now is being around other people who have special skin just like him.

There is a Patient Care Conference in Nashville, Tennessee for people with Epidermolysis Bullosa from July 30th -August 2nd. At this conference Anton and his family will be able to meet with members of the medical profession who have developed expertise in particular areas of EB care. Academic researchers and organizations conducting research into treatments and most importantly they will be able to hang out with people who have special skin just like Anton.

If you are able to give this would be a huge blessing to Anton and his family.

Thank you so much for donating to this fundraiser and for sharing it with others!

For more information about the Patient Care Conference:
http://www.debra.org/PCC2014

For updates on Anton check out his FB Page:
https://www.facebook.com/pages/Help-Anton/142880872427136?ref=hl

$2,300

 

153% Raised of $1,500 Goal

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  • IRINA PATRIKEEVA

    $25

  • Jorel Ker

    $50

  • Valeria Korchagina

    $25

  • Linda Benham

    $15

  • Anonymous

    $100

  • Anonymous

    $25

  • Martha Cervenka

    $100

  • Olga

    $25

  • Anonymous

     

  • Anonymous

    $500

  • Loretta Kostyo

    $25

  • Miracle Twin Boys

    $25

  • Anonymous

    $50

  • The Jensen Family

    $200

  • Anonymous

    $30

  • Tara Cervenka

    $50

  • Anonymous

    $30

  • Christine Nieto

    $100

  • Anonymous

     

  • Rosales family

    $20

  • Anonymous

    $100

  • Laura Williams

    $20

  • Bren and Robert Young

    $25

  • Anonymous

    $20

  • Blake, Amanda, Sydney & Thomas Upton

    $25

  • Melanie Williams Thomas

    $50

  • The Horowitz Family

    $50

  • Svetlana krasokhina

    $15

  • Anonymous

    $100

  • kevin hastings

    $100

  • The DeWitt Family

    $100

  • Kate Romashova

    $100

  • Jan Thomas

    $50

  • Linsey Fagan

     

  • The Gray Family

    $10

  • Anonymous

    $50

  • Sarah & Louis Darrouzet

    $50

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Organized by

vanessa delgado

This is a direct to organizer fundraiser.

Donor Comments

Sarah & Louis Darrouzet

Sarah & Louis Darrouzet

DONATION: $50

We love you; our prayers are with you and your family. 4 years ago

Anonymous

Anonymous

DONATION: $50

He is so brave, and you are so loving! 4 years ago

The Gray Family

The Gray Family

DONATION: $10

Have fun Anton! 4 years ago

Linsey Fagan

Linsey Fagan

4 years ago

Jan Thomas

Jan Thomas

DONATION: $50

4 years ago

Kate Romashova

Kate Romashova

DONATION: $100

To dear Anton and his wonderful family 4 years ago

The DeWitt Family

The DeWitt Family

DONATION: $100

4 years ago

kevin hastings

kevin hastings

DONATION: $100

4 years ago

Anonymous

ANONYMOUS

DONATION: $100

:) 4 years ago

Svetlana krasokhina

Svetlana krasokhina

DONATION: $15

4 years ago

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