EVENT DATE: Jul 01, 2011
HOURS PLEDGED: 25
9yr. Old Danielle Lerma was diagnosed with HLH in October 2010. This has devastated their family emotionally and financially! Hemophagocytic - Lymphohistiocytosis Disease is commonly known as HLH disease, it is also sometimes referred to as Histiocytosis. In 1983, the Orphan Drug Act was passed by Congress to create financial incentives for companies to develop treatments for rare diseases. Histiocytosis qualifies as an orphan or "rare" disease since there is no government funding for much needed research. The survival rate is around 5%. I hosted a fundrasier for Danielle on 3/29/11 @ Oggi's Pizza & Brewery and raised over $1500!