Skip to content

Help Jestina Get the Surgery She Needs

Organized by: Jestina Roberts

Jestina's Photo

THE STORY:

Hi, my name is Jestina and I'm 19 years old. I'm majoring in communications and I work as a retail key holder. My goal in life to eventually earn my J.D. and begin practicing disability law. I love working in customer service and helping others, but ultimately I want to make a difference for people like myself who struggle with disabilities.

For the past six years of my life, I've struggled to find a medical diagnosis for pain that I have in my neck and upper back until now. In April of this year, I was diagnosed with a rare disease called Familial Partial Lipodystrophy -- it's a genetic disease that causes my body to produce fat and distribute it in abnormal ways. I have no fat in my arms, legs, or torso, but all of my fat is carried in my neck and upper back.

Along with diabetes, trouble with my liver, and other dangerous symptoms, it puts a lot of pain and pressure in those areas. I can't lay down flat, stand, or sit for long periods of time. I have tried physical therapy, nerve blocking injections, and prescribed painkillers but all three have taken negative tolls on my health and I've been forced to stop. I have been forced to stop taking painkillers because of the additional damage it does to my liver. I can't even turn my head because of the fat buildups in my neck which makes it unsafe to drive.

My family and I have been told by several doctors and therapists that the only way to alleviate the pain is by having the fat surgically removed. Since receiving my diagnosis, I have been given three letters from three separate doctors and specialists stating that liposuction of my neck and back is medically necessary but my health insurance will not approve the claim. I have applied for two different kinds of financing but have been denied because of lack of credit. My final option is to pay for this surgery out of pocket and the estimate is for $5500.

My family is not in a place where they can help me pay for this so this responsibility has fallen into my hands but I can't do it on my own. I work full-time in retail as a key holder to pay for community college because I don't receive any assistance for tuition and taking on an extra $5500 is something that isn't reasonable. If I divide my paychecks to where half goes to my tuition and the other half to my surgery, I won't have enough to pay for it until October 2016. I don't deserve to be financially strapped, in incredible pain, and in a state of mental turmoil for another year.

I just want to be able to experience life and the things it has to offer without being constantly managed by my pain. I really, really need your help. Even if it's just $10 or $20, that's better than what the government or my insurance is doing by me and I would be incredibly grateful. Even if you can't spare anything, I would love it if you could share this with others. Thanks so much for reading and for your help!

$1,209

 

22% Raised of $5,500 Goal

  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Joel Carlson

    $50

  • Anonymous

     

  • Nicole Tinson

    $15

  • Anum Chaudhry

    $25

  • Danielle Lopez

    $150

  • Kayno

    $40

  • Shon Harris

    $10

  • Anonymous

    $40

  • Drew Nash

    $50

  • David

    $15

  • Will G

    $50

  • Anonymous

     

  • Will and Trish Roberts

    $250

  • Anonymous

    $15

  • Jill Burns

    $50

  • Anonymous

    $20

  • Sapphire Carter

    $20

  • Arielle Swernoff

    $25

  • Uncle Larry and Aunt Sandi

     

  • Ellie

    $124

  • Mrs. F

    $200

  • fwarg

    $10

  •  
  •  
  •  
Organized by

Jestina Roberts

This is a direct to organizer fundraiser.

Donor Comments

fwarg

fwarg

DONATION: $10

2 years ago

Mrs. F

Mrs. F

DONATION: $200

Feeling lucky that I have good insurance, but you shouldn't have to be lucky. 3 years ago

Ellie

Ellie

DONATION: $124

Insurance companies are the worst. I couldn't get nerve extractions for over a year a while ago because the surgery was deemed "experimental" (It had been successfully performed on multiple patients already, but who cares right?) Anyway, hope this helps, stay strong 3 years ago

Uncle Larry and Aunt Sandi

Uncle Larry and Aunt Sandi

We love and will donate more later. 3 years ago

Arielle Swernoff

Arielle Swernoff

DONATION: $25

3 years ago

Sapphire Carter

Sapphire Carter

DONATION: $20

Keep fighting Jestina! 3 years ago

Anonymous

ANONYMOUS

DONATION: $20

Best of Luck! 3 years ago

Jill Burns

Jill Burns

DONATION: $50

3 years ago

Anonymous

ANONYMOUS

DONATION: $15

Best of Luck! 3 years ago

Will and Trish Roberts

Will and Trish Roberts

DONATION: $250

It is terrible that you are going through this and hopefully you will get some relief. Good luck, with much love and prayers to you! 3 years ago

Report this page — Let Us Know if you think this page is breaking the law or the CrowdRise Terms