BENEFITING: AMERICAN RSDHope GROUP
Complex Regional Pain Syndrome, or CRPS, is a progressive disease of the Autonomic Nervous System, and more specifically, the Sympathetic Nervous System. The pain is characterized as unbearably INTENSE and as though hot knives are contsantly stabbing the affected area. The pain is typically accompanied by swelling, skin changes, extreme sensitivity, and can often be debilitating. It usually affects one or more of the four limbs but can occur in any part of the body and in over 70% of the victims it spreads to additional areas. CRPS is ranked as the MOST PAINFUL FORM of chronic pain that exists today by the McGill Pain Index, higher than child birth or amputation without anesthetic. Please press " See More" to read my personal story.
I would like to share my firsthand experience living with CRPS. In 2010, I sustained an injury to my right ankle which then advanced into CRPS. I was 10 years old, in fifth grade, and since then I have been living with CRPS. The condition has spread from my right ankle all the way up my leg and to my right hand. Becuase of the intense pain and my inability to walk or even comfortably move in a wheelchair I had to pull out of school at the beginning of eigth grade. I am currently taking classes online to complete my freshman year of high school. Sometimes it is hard to talk to people about my condition. They do not understand what is wrong or why I cannot walk. Many times people do not understand that what I am going through cannot be fixed. Complex Regional Pain Syndrome, to them, is just a bunch of words, something they have never heard of. But to me CRPS is my life and it is going to be unless we find a cure or treatment that helps. I am no longer able to walk or use my right hand because of the pain.
You may be interested to know CRPS is frequently misdiagnosed as it was in my case for several months. Medical professionals have no cure nor treatment for this excruciating condition. There are, however, some experimental practices and treatments that have helped ease the pain in some CRPS patients. I am lucky enough to currently work with a physical therapy group that has successfuly cured one patient. We are using the strategies they implemented with her to try to slowly introduce the nervous system in my leg and hand to "normal movement." It can be a very slow and frustrating process because success is many times followed by regression.
ANYONE can get CRPS. It is estimated there are between 1.5 and 3 million women, men, and rarely children suffering from CRPS in the United States alone. Seventy-five percent of victims are women. The majority of victims develop the disease in their 30's and 40's but it can hit anyone at any age. Although in recent years, more and more patients in their teens and pre-teens, especially females, seem to be developing the disease.
Living with CRPS the past four and a half years has shown me the tremendous kindness and care in the hearts of all those in my life. I have been prayed for, fasted for, fed, visited, supported, written to, gifted, and loved. Thank you so much for your many acts of kindness in my behalf, concern for my well-being, and support of this very personally important cause. I appreciate you taking the time to learn more about me and my condition and I appreciate being heard and understood. I look forward to the day when I can walk pain free. It is enough to me that you have read my story and understand my situation. Please do not in any way feel obligated to donate but if you are interested in funding important and necessary research for the cure and raising awareness about CRPS click the big, orange DONATE button above. Thank you for taking the time to read about a 14 year old girl's battle with CRPS.
American RSDHope Group - http://www.rsdhope.org
CRPS Support Groups - http://www.rsds.org/supportgroups.html