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Help Sean Beat Leukemia

Organized by: Louise Vande Wiele

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THE STORY:

Meet Sean, my friend Tina’s son. This is their story.

‘Our precious Sean was first diagnosed with leukemia on October 6th, 2011, only two weeks after his third birthday. After a long regime of chemotherapy, Sean appeared to be doing better. He still had a long road ahead of him with daily chemotherapy and monthly lumbar punctures which would last until February 2015. Male leukemia patients receive a full extra year of treatment because if the leukemia relapses, it tends to do so in the testicles.

Sadly, on January 29th, 2014, Sean's leukemia did relapse in both testicles. We were all beyond devastated. The return was so strong that on June 11th, Sean had both testicles removed and will now have to deal with lifelong medications.

Sean has already been through so much with indescribable pain, nausea and diarrhea. All these side effects, caused by chemotherapy, affected Sean’s appetite, so an NG tube was inserted in October, 2011. These tubes continue to be a source of problem to Sean and need replacing regularly.

Some of the chemotherapy medication Sean receives (Vincristine) adversely affected the nerves in his legs, requiring constant physiotherapy, splints, and the use of a stroller.

On June 27th, he underwent a bone marrow/stem cell transplant. These two procedures were part of Sean's oncologist's “Plan B”, which was definitely more aggressive than his first round with Cancer.

Finally, 49 days after his transplant, we were told Sean could finally go home – in strict isolation – until at least his day “100” on October 5th. We were told before we went home, our furnace had to be cleaned, air ducts cleaned, all carpets professionally cleaned and dryer vents cleaned out. I contacted four companies and the quotes were well over $1000.00. As I have not been able to work since Sean was diagnosed in 2011 and my social assistance cheque is $317.00 after my rent is covered, unfortunately, I cannot afford the required services to make our places safe and healthy for Sean. I asked our hospital social worker for financial assistance and my worker at the “social assistance” office and no financial help was available to help us out. (How very sad!)

There is also a mouse problem where we live and exterminators want to charge $150.00 for their service, which is also quite toxic for Sean.

Presently, the only room Sean is allowed in, is his bedroom which was bleached and cleaned before he came home from the hospital.

We would gratefully appreciate any financial help we can get, so Sean can have his home back.

Thank you,

Tina & Sean’

Thank you for reading Sean’s story. Since this was written and sent out, Sean had a relapse and is now back in hospital but we hope that he will be able to go back home in the next while.

Tina is a single parent and because she is the one caring for Sean, she can’t work, lost her house and moved into rented accommodations, and no longer owns a car… indeed, all living expenses have been cut down to the bone. Add to that the costs of having a child in hospital and life is a constant battle. Think of making do on $317 a month, when you have to pay for looking after a teenager at home (Shannon goes to school and has an after school job), and covering meals and transport costs, skin creams and laxatives for Sean to counteract the effects of the chemotherapy and radiation, new softer sheets because Sean’s skin is so compromised right now, and so many more expenses we never expect.

This is why we are reaching out to the GoFundMe community to see if anyone can help. No donation is too small, and of course, none too big. This family has already lost so much, and continues to fight a battle no child should ever have to fight and no mother should watch.

Thank you for any help you provide.

Louise

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Organized by

Louise Vande Wiele

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