Help Sherry honor Lee Wolkowitz by donating to OTST
Organized by: Sherry Shieh
EVENT DATE Jan 03, 2016
Lee Wolkowitz died on June 17, 2015 of a rare Testicular Stromal Tumor that had already metastasized by the time it was discovered. Luckily, most testicular cancers are treatable and curable, but the rare type that Lee had fell under the 5% that is not. As his girlfriend, I watched as he fought so bravely and held out for any hope that there might be new clinical drugs that would stabilize his cancer. Lee went through 10 months of chemotherapy and some radiation, but ultimately, his cancer continued to spread. It is incredibly heartbreaking when esteemed cancer doctors wrote back to Lee's emails saying they had no help to give, no information to share. The International Ovarian and Testicular Stromal Tumor (OTST) Registry is an organization trying to gather these small number of patients and to advance research. They're under the auspice of Children's Hospital and Clinics of Minnesota because these rare tumors often present in children. When I contacted the OTST Registry organizer directly, she called me back within a day and referred me to the urologist that was spearheading their research. Dr. Cost then called me back the NEXT DAY and offered to review any medical information Lee wished to send. Lee sent an email, and within a day, Dr. Cost corresponded with his team, and responded with recommendations as well as an offer for any support he could give. Unfortunately, it was too late, and Lee's cancer already made Lee too weak to try further treatments, but it always stayed with me how helpful this organization was and how quickly they responded. I knew I wanted to do anything I could to help them. This January 3rd 2016, I will be running a 5K, something I've never done before. Running became a way to channel my grief at Lee's death into something positive and healthy. I decided that if I make it through this run, I would donate money to OTST as a reward for my accomplishment. I hope you'll join me in giving to this great non-profit organization (www.otstregistry.org) trying to help those that suffer from rare cancers, like Lee did. Someday, maybe someone like Lee won't have to go through the same suffering and fate as Lee did.
All money raised here will be donated to the non-profit OTST Registry via a direct donation by me, Sherry Shieh. This is a tax-deductable donation, so please contact me directly so I can let the Registry know how much your donation was. They will provide you with a receipt.